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Disney's in the Desert

Moon Pod Review

February 19, 2022

Have you ever seen a lounging chair THIS cool!? The Moon Pod is so innovative and unique – built to sit in, recline back, and even SLEEP! #saywhat?!

I shared the one we have in Honey’s room a few months ago (below) and received so many questions about it! It is really versatile and SUPER comfy – you literally feel like you are floating in it! It’s quickly become everyone’s fave chair so when Moon Pod asked if we wanted to work together again, I couldn’t say “yes!” fast enough!!

The Moon Pod is not your average bean bag: it’s actually made with custom responsive high friction, high density beads unlike the competitors that use the low quality stuff that wears down quick and loses its shape. These beads also mimic the sensations of floatation therapy which has been known to reduce stress and anxiety.

It also was made to respond to any body shape and movement, and provides great support while still being able to be stretched. The cover options are super soft and comfy.

The kids now have one downstairs to take turns on when they’re reading, relaxing, and hanging after school playing a game before dinner. On the weekends they love grabbing Honey’s Rose Quartz Moon Pod from upstairs along with our new Space Gray one (shown here) and putting them in our larger family room space to turn on cartoons or a movie after breakfast!

What we also love (as parents!) is that the Moon Pods do not take up a lot of room at all and are great space savers. They only take up 4 sq ft and are extremely easy to move around the house or room from place to place!

This amazing company also offers with a few accessories to elevate your Moon Pod to another level – check out their Crescents and Lunar Lifts for the ultimate relaxation station!!! (Also another cool sidenote: this company has been endorsed by none other than Cardi B and Justin Bieber!!)

Moon Pod is giving my readers a total of 35% off your order with the code ANG10 right now which would be the perfect time to try them and get something relaxing for yourself! It can be applied sitewide too if you’re wanting to prop yourself up in bed with a Cresent or needing a little lift in your living space with the Lunar Lift! As I mentioned, the kids are OBSESSED with these bean bags and they’re just as much for adults too! I personally make myself comfortable in them when I can snag it away from the kids, haha. They’d be amazing in an office, family room, nusery, kiddo room, or even playroom!

Filed in: Home, Mom Hacks, Motherhood, Uncategorized • by angmdisney •

The Transition from 1 to 2 (..and on!)

February 17, 2022

One of the most frequently asked questions we get is, “how was it going from 2 kids to 3?!” Really though, 1 to 2 kids was the biggest challenge for us as a family (even harder than 0 to 1!!!!). It tested our patience, and stretched us to our thinnest. It also brought us a fulfillment that is hard to explain with words.

I think – actually I know that our transition from 1 to 2 was pressurized by the fact that our second came 6 weeks early and had an unexpected NICU stay from there. While it was thankfully short lived, we faced many struggles for that first year and the adjustment. From feeding issues (he had a feeding tube while in the NICU), breathing issues (was on a nebulizer on and off that first year), and a compromised immune system from being premature that lead to him catching everything under the sun and making us more cooped up at home.

Cole, born 6 weeks premature, a few days old here in the NICU

Prior to becoming preemie parents, we thought we had a good routine. Conner was just under 2 and we had established his day to day, hour by hour pretty much down to a science. I figured I’d still have time to work (I have always worked from home since he was born, running my own business) and eventually I’d get him and Cole to sync their naps. Well, my expectations were way too high…but there’s hope! Things will definitely be a little hectic (I’m really trying hard to not use the word ‘chaotic‘ in this post, I’m just about there though lol) at first but you will find your groove.

Here are a few things that helped me in balancing and taking on the new title of “mom of 2”.

Ask For Help…and then ACCEPT it.

I was (probably still am to some extent) so hard headed when it came to getting things done on my own. Having c-sections, help is definitely necessary. You’re not supposed to lift anything heavier than your baby, but obviously the more kids you have (and if you have a partner who works as much as mine), you might have to get creative if help isn’t an option. As moms, we power through things, no doubt, but I *highly* recommend making arrangements for extra hands if you can. Your mom, dad, mother in law, father in law, coworker, sister, cousin, BFF – ask. AND if/when they offer, just say “okay, yes, thank you!!”. You’ll thank your own self later.

Establish a Schedule

This will take time. Your newborn isn’t going to be on one from day 5. It will take time. It will take a lot of trial (and maybe even some error). Getting all 4 of our babies on a schedule around 3-6 months was a game changer. They will start to get used to these times of day too – they are tired around the same times and will expect certain routines once they’re old enough and/or sleeping the night. Yes, this may mean you’re bound to the house a little bit more but I promise it is worth it. When Colly was born we had 3 older kids with very busy schedules between school and sports. She had to go with the flow from the time she came home from the hospital. She was forced to skip naps or stretch bedtimes here and there but when we were home we kept it very consistent. Life has to go on once you have other kids and you bring home a baby, so just keep that in mind too.

Plan One on One Time with Oldest/Other Kids

2015 | Playtime with Mama outside while baby bro naps

Your time will now be divided, that’s obvious. When you can, make sure you still carve out that one on one time with your oldest (or older kiddos) whenever the window of opportunity presents itself. If you know your new baby will be going down for a nap, maybe you want to use that time for yourself and that’s fine – but maybe pick the next day during nap time to build blocks or play outside with your older kiddo. There are so many things you can do from home – imaginative play, baking (my personal fave), reading, etc to get in that special one on one time still while the baby is having downtime.

Meal Prep

This was something I really focused on before I had Colly – I knew prior to having her (and having a c-section at that), I’d be away for a few nights and wanted my family to still be able to eat and not scramble. I love these containers for easy re-heating and cleaning (microwave and dishwasher safe). Something that was a huge help to me too was any time we had left overs that could be frozen, I made sure to store these as back ups for when I was home and getting used to the adjustment.

Lower Expectations

This is another I struggle with because I am so Type A, but lowering expectations during these transitions is necessary. You’re amazing, but you can’t do every. single. thing. Give yourself grace (+ time!) and things will smoothen out as time goes on. It’s unrealistic and can really put unnecessary pressure on yourself if you think, “once I pop this baby out I’m going to….!” or “well my first baby did this at this time, this next one will too!” – trust me #beenthere. The thing is you will do whatever it is you intend to do, IN TIME. Just don’t beat yourself up trying to get there in a rush. For example, Conner was in his crib sleeping the night by 3 months. When that didn’t happen with Cole, I thought it was all of my fault and something wrong with what I was doing. Every baby is different. Oh, and for the record- baby number 2, 3, AND 4 did not go into their own room/crib until 6-7 months. Every baby is different!

Invest in Magic Erasers

Kinda goes without saying. Even if your kids aren’t coloring on the walls while you’re feeding the baby, they’re just nice to have on hand if/when something epic does go wrong.

Hide The Scissors

I mean…. I never thought it would happen to me. True story: I went downstairs to switch the laundry while the boys were watching a show and newborn Honey was napping. Conner (4) snuck into the bathroom drawer where we kept hair sheers and cut off two big chunks of Cole (2)’s hair. Toddlers. They’re capable of a lot in literally .2 seconds.

Baby Wear

Baby wearing at the park

I understand it’s not for everyone, but it was a huge help for me after I had Cole. I never really baby wore with Conner so it wasn’t something I thought I’d do with #2 and I was so wrong. I remember being extremely stressed and asking my girlfriends who each had 2 kids at the time, “how am I going to go to the grocery store (before there was online ordering/drive up) with BOTH boys? I don’t know how I’ll fit them both in the cart and my groceries, too, ALONE!?!!” One of them said- get your wrap! I had bought one just in case and it came in handy for these times.

Emergency Bag + First Aid Kit

Having one of these handy in the car/on the go was so helpful to me as a new mom of 2. We still keep one in the trunk of my car just in case! My ER bag has things if we ever get stuck – a little cash, things to keep the kids entertained (hot wheels, small coloring books, wikkistix, etc), a lifestraw, and a change of clothes for each kid. First aid kit is kinda self explanatory – you never know when someone will randomly *need* a bandaid.

Pick Your Battles

Something I accepted then and still accept now – it’s physically and mentally not possible to control everything that’s going to happen. I clearly remember when Cole was brand new (and a handful) and Conner wasn’t even 2 yet and our mornings were pretty hairy. One morning Conner had snuck an Oreo from downstairs while I was tending to his baby brother and my first reaction was “OMG!!! NO!!!” but then I just had to laugh. It was pretty dang cute and something I will literally never forget. Would I have let him eat that for breakfast? NEVER. But, I knew that it was one of those things that was kind of out of my control at that very moment and I chose to laugh it off (and of course told him “we don’t do that!”) rather than actually having a real mama meltdown over it. These days picking my battles usually means letting Honey wear her Elsa dress for the 3rd day in a row and caving into some extra screen time when I need a moment. Again, I’ve learned not to beat myself up over EVERYTHING.

Don’t Stress or Force Sibling Love

I feel like we got exceptionally lucky, but each baby we had the kids were completely smitten and never expressed jealousy. I know it’s probably not the norm, but I feel like it helped that we prepped them as much as we could with just discussing it openly – even if they were too young to understand. Conner was not even 2 years old when Cole was born so he definitely did not understand pretty much anything, but I think he instinctually knew that was his baby brother and loved him from day one (and now they fight like cats and dogs but have the strongest bond ever).

Baby Honey

Cole was 2 when Honey was born and very much still a “baby” even though he was 2, he was gentle and so so sweet with her. We didn’t force them to love on the new baby (and of course we watched them all super carefully around him/her) and these bonds flourished. If it doesn’t happen right away, don’t stress over it. I promise, it will happen, and it will melt your heart into a puddle when it does!

When Colly was born, the kids were all a little older (8, 6, and 3) and that as a whole other ball game. Honey was the most excited leading up to it, but the boys (specifically Conner) surprised me with how ecstatic (and territorial) they were over her once she got home. It still makes me tear up thinking about that special time. I literally had to set timers on Alexa on when it was the next ones turn to hold her – that’s how obsessed they were!!

2021 | Conner and Colly

Don’t Compare

HUGE. Huge, huge, huge.

I know this is one that can be easier said than done too, but don’t compare what you’re doing to any other moms you know or see. You’re the best parent for your baby/kiddo(s). When transitioning from 0 to 1, 1 to 2, 2 to 3, and beyond… you might think back to something you saw, read, or even experienced another mom doing and thought, “they made it look easy”. Trust me, you’re not looking hard enough. It’s not easy. Just focus on you and your babe. Do your best. You’ll have hard days but kids are so forgiving and resilient. Also, this kind of goes along with what I said in “lower your expectations” – but don’t compare what one kid did to the next. They’re all unique and every baby is different. Hang in there!

Shower At Night

I’m always usually rushing in the morning, so if I could skip that step I’d have a few extra minutes to SLEEP (if of course, the baby/kids are still asleep). For me it’s hard because of my hair (if I want it to look good all day, I have to wash it in the morning – I cannot brush it while it’s dry so showering at night is hard for me for that reason). In my case, getting up 20-25 minutes earlier will allow me to do this and get a few minutes in the morning just for me without kids pulling on me or needing food, haha.

Trust Your Gut

Kinda goes with the above. You know best! That feeling you’re feeling is valid. Go with your instinct.

Hire A Sitter

This is another we (I) still have challenges with because I can be pretty controlling. When you’re into a routine with your baby or have just had the next one and you’re comfortable leaving for a few hours, DO IT! We have someone we know and love so much and when we can occasionally hire her to the house, I always come back feeling so refreshed and thinking about when is another time we can do this again. It’s hard letting go of the reigns for most of us but loosening up is good for the soul (and mind!).

Final Thoughts – Enjoy This Time!

Obviously everyone is different, but this was my take and hopefully it can help some families who are getting ready to or just about to transition! One last thing… ENJOY these moments as much as you can!!!! It’s cliche but it does go by in a blink. They’re only this little today. Tomorrow they are one day older, closer to another year older. Take all of the videos!!! Someone told us when Conner was a baby to take all of the sleeping baby videos. It’s something I’ve held onto in my ‘core memory’ (is that how you say that new term? lol) and stuck to with each baby we’ve had.

Like I mentioned in the beginning of my post, 2 to 3 was so much easier for us. Are we pros? Nope. But I feel like after 2 kids, you really don’t sit down much…so what’s one more? And 3 to 4? Well, I’m only a little over a year into that so maybe I’ll discuss in another year or so 😉 I try my best every day, but I still lose my patience and end up winging it a lot. Stay strong mamas! You’ve got this!

Filed in: Mom Hacks, Motherhood, Uncategorized • by angmdisney •

Meal Planning Tips

February 15, 2022

Meal planning doesn’t have to be hard or complex! I shared on my stories recently that for the longest time after C and I had been together, married, and even had our boys – cooking was not something I enjoyed or really did much. It felt overwhelming, I felt like I couldn’t, I was “clueless”, or “didn’t have the time.” As the boys turned 4 and 2 and we welcomed Honey, I decided I needed to buckle down and cook for my family! I did care about what they ate and put into their bodies, where we got our food, what we SPENT on food, and providing things they liked – so why couldn’t I tackle this? It wasn’t as daunting as I was making it.

For the last 4+ years, I’ve been following these little tips to help me stay on track when I’m planning our family meals. I hope this can help and inspire some of you to get into the kitchen!

Timeline – How Many Dinners Will You Make?

There are 5 week days, right? I choose to cook (and shop) for 3 of them. That means 2 week nights I will grab something easy from the pantry (boxed/package meal), freezer (nuggets, frozen pizza, things I can toss in the air fryer, etc) or order in/out depending on our sports/extra curriculars schedule. I am able to stick to cooking 3 nights and not going down the route of ‘I’m just going to grab a frozen meal, a meal kit, or hit the drive thru because I’m tired and don’t feel like cooking’ more frequently than those 2 nights that are slotted for just that. I’ve already shopped for those groceries/produce and I’m not about to let them go bad! Plus, the longer you stick to this, I promise the more enjoyable it becomes.

Do what’s realistic for you. If you aren’t cooking just yet, 3 might be too much for you. Start with one night and build from there! We also leave some flexibility when it’s sports season and our week nights are even busier. If I have time, I’ll try to feed the kids something light before practice, but usually those are one or two of the weeknights I don’t cook.

Consider Your Time

When you’re planning what you’re going to make/shop for, consider the time it will take you to make AND clean up. Have it be attainable/reasonable. I’d love to gourmet-it-up, but my lifestyle doesn’t really allow for recipes with dozens of ingredients and lots of time in the kitchen.

I try to incorporate meals that are different and usually lean toward things I know will jive together and aren’t a lot of fuss. Occasionally I’ll step outside of my comfort zone and throw something together that isn’t in my wheelhouse but still isn’t something I’m spending hours and hours on or babysitting.

Some pantry and fridge I like to keep in stock at all time to make meal planning even easier: butter, chicken stock, spinach, cream cheese, heavy cream, garlic, canned cream of chicken, and canned diced tomatoes.

Shop For What You LIKE

Pick meals/produce/ingredients your family will LIKE! This is key – if I am choosing what I know they like, it’s that much easier to incorporate veggies, protein, fibers, etc! Of course there are things they’re not going to like (certain ‘green’ stuff – but they still have to eat it here and there! and if I’m adding spinach to a cheesy pasta I know they like, it’s not that big of a deal.

Plan Ahead

The girls and I on a Monday before heading out to do our weekly grocery pick up

Choose 1 day a week to grocery shop. For me, I always shop on a local grocery app Sunday nights and then I do order pick up Monday with the girls. We do it during Colly’s wake window, hit Starbs, listen to music, and have a fun time! It truly does not feel like a chore.

Keep The Ideas Flowing

A recent recipe: crockpot pork chops and potatoes

Consider keeping a running list in your notes app in your phone (or wherever you store notes/reminders) for meals you want to attempt, create, or recreate. There are so many ways to find inspiration for your next dinner. I like to make a note for the current week on Sunday before I grocery shop and if there’s another meal I’m thinking of but I’ve already planned my 3 for the current, I move it to the next and I’m already ahead “idea wise”.

It’s ok to also fall back on repeats and favorites! Every other week I will try to do a salad as our meal and just fill it with our favorite proteins, hard boiled eggs, and other veggies and cheeses. My kids also love pita pockets so I’ll make my easy greek chicken (crock pot!) and stuff the pita pockets with veggies that we have on hand. And when all else fails and I feel stumped on what to add in that week, I’ll go to my trusty “easy go to weeknight pasta”.

Buy In Bulk + Buy Generic

If possible and this is an option for you, plan to make a trip to Costco or Sams every other month or once a quarter to stock up on protein. We freeze everything, and then when it’s time to shop and cook, I can dethaw and don’t need to buy extra. It REALLY reduces my grocery bill week after week by not having to add a few pounds of chicken or beef each time.

Another thing I do is try to buy generic for just about everything. *Cue the “no one’s going to know audio”* But seriously. No one can taste a difference, and where I can save a few bucks, it ends up going a long way in the big picture (especially feeding a family of 6 now!)

Time To Get To It!

As I always say with organizing… the biggest step is starting! You have to make an effort and follow thru, and once you do you will feel motivated to keep at it. I feel so much less scattered when I stick to this routine. I feel like I’m setting myself up for success when I have this checked off my list. It really affects my whole mood when I’m prepared, and I feel like a happier mom because of it. I hope these little tips help and you’re planning and cooking with ease super soon!

Filed in: Home, Mom Hacks, Organization, Recipes, Uncategorized • by angmdisney •

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Welcome!

Welcome!

Hey and welcome to my little corner of the internet! I’m Ang Disney (yep, DISNEY!): a wife, mom of 4, and an entrepreneur. Some of my favorite things in life are Jesus, my home state, piano, HGTV + Food Network, swimming, iced coffee, and deal hunting! I also love music - literally just about every kind. My playlist jumps between worship, country, 90's, rap, rock, and even healing frequencies ;)

In this space I hope to inspire you. I genuinely enjoy sharing my fave mom hacks that I use in my every day, home decor, DIY, easy recipes, and attainable fashion for yourself + kids on a budget. Grab a cup of your fave drink and stay a while!

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Popular Posts

Homemade Coffee Cake

The Best At Home Iced Lattes

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The clockwise pour is essential 🧸🍂☕️ Sh The clockwise pour is essential 🧸🍂☕️

Shared this recipe step by step on my blog! Plus a maple butter version is on there too🧋✨🎃

www.disneysinthedesert.com
I just want to share that we are watching a miracl I just want to share that we are watching a miracle… which is the story of Colly’s life - right before our eyes 🥹🥲 Colly has Rett Syndrome, a rare and severe debilitating neurological disorder. For her current age, and the progression of the disease in her body - it’s truly mind blowing to witness her hitting BIG goals and overcoming huge feats. God gets all of the glory in this and we know with Him, all things are possible. Every day we are believing for more miracles for her… not just the big ones, but the small, seemingly insignificant ones that make such a difference in our lives. 

The determination and will this sweet girl has is so inspirational 🥹 She works so hard, thru tons of pain and struggles, every single day. Literally every hour of the day. Our older kids affectionately call her “the GOAT” - because she really is! 🐐🏆

I’ve recently had an influx of messages from parents just receiving this horrible, terrifying diagnosis. It can feel like a nightmare, and so overwhelming… there’s nothing to sugarcoat with the challenges in navigating this. But what I also want to say, is… don’t lose HOPE. Keep exploring every option out there, keep pushing for more (of everything — including answers, therapy, outside of the box ideas, etc). Your daughter will surprise you!!! There’s so much goodness still in store. Ultimately, God is still writing a beautiful story for her life. It’s filled with purpose and joy.

Mark 11:24
Today on the blog I am sharing my bedroom refresh! Today on the blog I am sharing my bedroom refresh!! After Colly’s diagnosis and a really hard season of life, this room slowly turned into a dark dungeon and a sad place for me. With feeling emotionally better these days (therapy + joining a grief group), I’ve decided to reclaim this space and let the light in again ✨ 

I also wanted to add some neutral colors, natural tones, and cozy textures to make it feel comforting. My goal was to make this little area my sanctuary to reset and *rest*. There’s a few spots to sit and enjoy some peace, too!

The whole room really comes together beautifully with the addition of my new King size @beddys! Truly a game changer as a parents of 4. We can tidy the whole room with just a quick zip! Beddy’s was also so kind to increase my share code to 25% off just for my followers for a limited time!!! (Code: ANGDISNEY)

Full tour + sources to decor, furniture, and more is now live at www.disneysinthedesert.com 🤎🕯️
Not ready to pull the trigger on Halloween decor j Not ready to pull the trigger on Halloween decor juuuuust yet, but I will pregame 😉 How fun and unique are these slippers that match the iconic @pillsbury cookies?!! 👻💜🎃

Everything is linked on my LTK shop + blog tonight!
Overly excited about this cute lamp I found for my Overly excited about this cute lamp I found for my kitchen!! Also a little sneak peek of the upgrades we did this spring to the counters, cabinet, and backsplash 👀 More on that soon!

Linked the lamp and bulb on my blog tonight! 💡✨
The cutest $4 graphic tees my girls have been wear The cutest $4 graphic tees my girls have been wearing all summer! Pair them with this pack of 6 colorful bike shorts ($13!) and you have multiple outfits for weeks!!! I showed how adorable they look on my blog tonight!! Find all of the links (blog + products) in my bio 🌼🎀🩵🍓🦋🍭
An amazinggggg show 🤠🏜️🎤🔥🌵 Got o An amazinggggg show 🤠🏜️🎤🔥🌵

Got out with some friends to see MW last night in PHX! We had great seats (thanks to the guy I married 😉) + the best time!!!
They were summery before… but we went a little f They were summery before… but we went a little further ☀️👙👗🍉⛱️🌊🍭✨

In my era of natural nails (the goal is to be fully natural with them - no salons + no UV lights!) but starting here. Just a colorful gel mani and allowing them to grow without tips. Save this for your next nail appt! 😎
Happiest Birthday to the OG Honey Girl 🍯🎈🎂

She’s made our lives SO much sweeter 🥹 It’s truly an honor and privilege to have a front row seat to her childhood, though I’m forever wishing time could slow down just a 🤏🏻 bit. Soaking it up and cherishing each stage we reach because I know it goes quick!!!

I have so many prayers for her for this next year. My biggest one though is that she continues to seek Jesus. I am believing that she will keep Him first and that His hope + joy carries her thru any and every challenge. 

Our special HunBun! What a beautiful miracle 🥹🌈💖 Born on the 9th day just like both of her parents… it’s our unique little bond! One more year until her golden birthday 🥹
How was this already over a month ago?! 🤯 Time How was this already over a month ago?! 🤯 Time is flying. I couldn’t skip over sharing about the last appointment with my girl, the curl queen herself, @lustrae_!!! ➿🩵 

We have been working for the last year to get my color to the ✨blonde of my dreams✨! We’re pretty much there and I’m obsessed!!! Did a little trim too to hopefully keep it growing (the length is there but shrinks up a ton bc of the curl). 

If you’re a local curly, you need to book with Lex!! I’ve had this hair for 30+ years now and am still learning new things thanks to her incredible tips and help! She will work magic on your curls and literally just the sweetest person ever!!! 🪄👑✨
What an incredible opportunity to go (live!!!!) on What an incredible opportunity to go (live!!!!) on @arizonasfamily yesterday! 🎥✨

We were able to share some of Colly’s story along with our fundraiser with @picazzositalian that’s supporting Colly’s pediatric therapy clinic, @bloomkidz_az 💚 In April, $1 of every dessert sold at all 6 stores is being donated here. We are so grateful to be able to give back to such an incredible organization that’s been monumental in Colly’s progress and unwavering in support to our family the last 2.5 years. 

Thank you to @cerretanews for taking the time to chat with us and to @elainavpr for always advocating for our family so generously and in such a special way!! 🤍 

#rettsyndrome #rettsyndromeawareness
If you’re still looking for an easy treat to bri If you’re still looking for an easy treat to bring to dinner tomorrow, try this!! The cutest 💛🐰💖🐇🩵

Wishing you the happiest Easter, knowing He did it for me and you ✝️🕊️
Colly works so hard 🙏🏻 At age 4 and by this Colly works so hard 🙏🏻
At age 4 and by this stage of this savage disease, eating by mouth (chewing and swallowing) plus gaining (and even maintaining) weight is extremely difficult. Additionally, most girls cannot use their hands for anything with purpose at this time as well 💔

Please join us in praying that Colly will continue to have hand strength + the ability to use them, that she can tolerate eating by mouth, that she stays seizure AND med free, and that she continues to grow and gain weight. Thank you friends!!! 🫶🏻 Forever grateful for this community who encourages and cares about us.
Obsessed with our new zebra blinds from @lustrowin Obsessed with our new zebra blinds from @lustrowinhome! This was a dream collab for me and it really elevated the windows in our family room, kitchen, and living room ✨ I love how these blinds easily allow for light to pour in during the day while still providing privacy at night. 

They have so many beautiful, modern, and stylish options of window treatments for any home! Use code “DISNEY” to save sitewide at Lustrowin - link in bio!

#ad 
#lustrowin
#homefinds
#homedecor
#windowtreatments
#modern organic
Just received this video from Colly’s PT 2 days Just received this video from Colly’s PT 2 days ago and have already watched it on repeat about 100x 🥹 The squeal of joy is something we don’t take for granted when much of her short life has been consumed with crying, anxiety, pain, and frustration. She genuinely seems so happy and joyful 🥹😭

Also can we also just take a second to acknowledge how much motor planning and brain power it takes to repetitively jump up and down like this?! THAT’S OUR GIRL!!!!! 💪🏻🧠✨

We believe in the power of prayer and humbly ask everyone reading this to please keep praying for her. I will always desperately want more for her, and I am believing in His perfect timing that it will happen. 

#rettsyndrome #rettsyndromeawareness
This is long, but worth a watch!! Colly has been a This is long, but worth a watch!! Colly has been absolutely CRUSHING Rett Syndrome this past month. Literally saying, “Rett who?!?!” 🤯🤗👊🏻 November we witnessed so many miracles happening for Colly. It wasn’t without some bumps, but we have SO much to be thankful for. 

By age 3.5 (she’s so close to 4 now!), most girls with this disease no longer have purposeful use of their hands. Every day she’s able to still use them in any capacity is a miracle, but the fact that she’s doing even more beyond that…is almost unbelievable. 🥹 She is not doing what medical text says she should at this stage of the disease. 

We wouldn’t be where we are today without her massive team at @bloomkidz_az where she receives 5 different therapies M-F full time, and the last couple of months adding in weekly appointments with @dr.connerbor. The impact all of these treatments are having on her is huge, and at this point, essential to her development and continued progress. 

It’s so exciting to be able to post happy + encouraging updates about Colly after so much darkness, sadness, and confusion. Please pray we are able to keep her on this stable track of good health, pray for her team to have the wisdom they need to continue to help her, and pray for even more strength for her body and brain! 💪🏻🧠✨ We can’t thank you enough for cheering our family on as our sweet little girl continues the fight of her life.
The most healing Halloween + diagnosis day yet 🕊️

It’s not a secret that I still carry a heavy grief over Colly’s life. Ultimately, the prognosis of Rett is very dark but seeing her progress since she was diagnosed is nothing short of inspiring. We have so much hope for her future and although there is still much uncertainty, she has an amazing team of therapists, doctors, and supporters. She has treatment plans and goals. She has a family who loves her and will never stop pushing for more for her. 

I was telling a friend recently that this day will always be a reminder of the ending of the dreams/life I saw for her, but how can I wallow in sadness when there is so much joy? Colly IS that joy ✨🪽

God has revealed a lot to me these last two years and has pulled me out of a really scary pit. He’s wiped my tears, softened my heart, and given me strength to be a better mom, caregiver, and person for Colly + my other children. Instead of dread, my excitement for life is returning and I can’t wait to see where we’ll be next Halloween 🤍
Really they are so much fun 🦇💀🎃👻 I lov Really they are so much fun 🦇💀🎃👻 I love making my iced coffee at home in them!

Some have sold out but there are a few styles left! Linked on my blog as well as my LTK shop (in bio!) www.disneysinthedesert.com
Finally sharing the small update I did earlier thi Finally sharing the small update I did earlier this year in Colly Girl’s room! I used a wall stencil from Amazon + the colors are Snowbound and Warming Peach by @sherwinwilliams for the paint 🤩 

I’m personally obsessed with how it came out!! More details on my blog tonight (link in bio)! ☀️🧡🧸☁️
We are beside ourselves and elated 😭😭 If you We are beside ourselves and elated 😭😭 If you are new here, Colly had a handful of words before her second “Rett Regression” in 2023 where she lost them all and went completely silent. A few of those words returned this year with the regression ending (praise the Lord) but “Dad” was never one of them. 

She had said “ddddaaaa” in January of this year but not much came after that. Fast forward to the end of this month, and now when we ask her to say it on command - she seemingly is doing just that 🤯🤯🤯🤯🤯🤯🤯 Absolutely blown away. I swear she’s even saying, “eeeee” at the end a few times as if to say “daddy”! 

We were told Colly would never verbally communicate amongst so many other heartbreaking (and a slew of other WAY MORE terrifying) things that accompany this disease. Honestly, verbally talking fell off of our wishlist a long time ago because we’ve seen her face many other struggles that make every day life so much more challenging for her. My hope has been renewed lately and I’m adding it back onto my dreams for her. 💫☁️ I know she will likely never verbally speak in sentences, but to have a few words would be incredible and I’m sure would do wonders for her anxiety and frustration levels as well. 

Continued in comments 🥹

#rettsyndrome #rettsyndromeawareness
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