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Disney's in the Desert

Holiday Gift Guides

December 14, 2021

Well friends, I’ll be honest — I totally intended to post this so much sooner! I started working on it well before Thanksgiving but time has been flying! My hope now is that you’ll be able to get some ideas for any last minute shopping or if you’ve been stumped on what to get for someone special/a friend/family member, this sparks an idea!

I’m going to share my “Mama” gift guide because there are some of my favorite things on here. We work so hard and some of these things help me unwind after a long day, and I’d love for another awesome mama to be able to enjoy one of them too!

GIFT GUIDE: MAMA

Candle // Clip // Mug // Toothbrush // Slippers // Candle // Cordless Vacuum // Camera

*MAMA RECAP* The Burst toothbrush is something I’ve been using for a full year now. C got me one for Christmas two years ago and I have to admit, I was less than thrilled – but not for the reason you may think (“yay, toothbrush…”) It was really just because I was like, “I’m so pressed for time, I don’t have any spare to learn another tool”. BUT! Let me tell you, that couldn’t have been further from the truth. You basically just open the box and it’s ready to use. SO EASY, and it’s done wonders on my poor gums. This toothbrush is the best one I’ve ever owned, hands down. I have been eyeing this mug for a while, I love that it keeps your mug hot, leaving you making 0 trips to the microwave to reheat your cold coffee after chasing kids all morning. It’s no secret these candles are my fave. This scent specifically is one I burn all fall and winter here. Last but def not least, I have to tell you about these slippers. I got them on sale a few months ago and they would make an amazing gift for any mama (or BFF!) I am obsessed. I love putting them on during Sunday mornings when we’re having a slow morning at home (making breakfast, watching the kids play outside) and at the very end of the night before bed!

GIFT GUIDE: HER

Tweezer Set // Scrunchies // Fanny Pack // Sunglasses // Scarf // Nail Polish // Jewelry Holder // Tumbler // Dryer Brush

*HER RECAP* I’ve never owned a hair brush/dryer in one, mostly because it wouldn’t make sense for my hair type, but I know SO MANY who own this one and rave about it constantly. It’s currently on a really good deal for the holidays! This jewelry holder is stunning in person (I’ve owned it for the last 3 years!) and it would make a sweet gift for someone you care about. I love the concrete look and it actually holds quite a bit. I keep it out on my dresser because it also doubles as a home decor piece IMO! Olive and June make my fave nail polishes. The colors are 10/10 and I would say they are very comparable as far as durability/lastability (is that a word? I don’t think so! haha) to Essie polish. I know everyone is loving the Stanley tumblers lately, but they’re super hard to come by due to stock/supply, so I found this tumbler as an alternative and think it’s just as cute!

GIFT GUIDE: GRANDMA

Doormat // Slippers // Canvas Bag // Keychain // Blanket // Mug // Always Pan // Frame // AirPod Holder // Echo Show

*GMA RECAP* The Always Pan makes an excellent gift for ANYONE but I recently just gifted my mom one for her birthday and it makes a great gift for someone who spends a little or a lot of time in the kitchen, trust me. Even if you’re only making bacon and eggs once a week, the Always Pan heats everything proportionally in your pan (not just the middle!) and clean up is a breeze. It truly does replace all of your other sautee/frying/sauce pans! I added my fave Target frames on this list because for under $19 you can get the largest size (18×20) and print a photo of your kids or your kids and Gma and place it in this beauty. I love the natural wood look, which makes it super easy to add to any home. This doormat I thought was super cute and probably any Gma would enjoy 😉 This is the same shop we got our ‘lots of kids’ doormat from too!!

GIFT GUIDE: HIM

Portable Charger // Slippers // Electric Razor // Wyze Camera // Brumate // Yeti // Always Pan

*HIM RECAP* The last time I checked, these Yeti coolers were on sale in select colors: score!! Again, the Always Pan is making the list in the color Char. I gifted C one of these a couple months ago and it’s his go to on the weekends. These slippers we don’t own, but they look luxurious 😉 The portable charger is a must for really anyone, but for someone like my husband who works from his phone all day long, it’s super useful and practical. I added our Wyze camera to this list too, because it’s probably C’s fave purchase from 2021. We sleep so much better at night with our Wyze watching our home!

GIFT GUIDE: THE COOK

Mixer // Nespresso Machine // Baking Sheet // Utensils // Knife Set // Air Fryer // Cake Stand // Cookbook // Perfect Pot

*COOK RECAP* Ok so it’s not a secret, I really love being in my kitchen!! Fun gadgets and pretty cookware make it that much more enjoyable for me. If you know someone who likes baking and cooking, I highly recommend all of these things!! How pretty is that air fryer, too!? My go to cookbook for easy weeknight meals is the Half Baked Harvest cookbook and I recently discovered these pink baking sheets from Anthro! LOVE LOVE!! The knife set is one I’ve owned for a couple years now as well and they’re still just as sharp as the day I got them and they wash really well too.

GIFT GUIDE: HOMEBODY

Popcorn Maker // Firestick // Diffuser // Monopoly // Beanie // Lounge Pants // Blanket // Bath Bomb

*HOMEBODY RECAP* Another thing that is near and dear to my heart…being HOME!! I knew I wanted to do a homebody gift guide this year and added a couple of my cozy faves. These lounge pants I bought for myself while I was pregnant with Colly last year, and while they’re not maternity, they worked so well and stretched and grew with me. I also loved them post partum and even post post partum now!! I wear them out and about too when I’m running errands and am comfortable the entire time. Some styles have pockets and some don’t, but I now own them in all my fave colors, so I hiiiiighly recommend these! Love the Casaluna brand and this gorg throw blanket from the line. I recently upgraded the diffuser in our room to this one and it is really quiet and sleek. The monopoly game was a little bit of a splurge but I figured when we’re not playing it, it can also look pretty on a bookshelf or our coffee table! 🙂

So, there you have it! I didn’t get around to kids gift guides this year with it being such a busy year and juggling work and the kiddos. We are keeping it pretty simple this year: the boys are getting a gaming console they’ve wanted and Honey is getting a new scooter. We’re also giving them a handful of books which I plan to post about pretty soon as well, so stay tuned! Happy Holidays!!

Filed in: Gift Guides, Holiday, Home, Style, Uncategorized • by angmdisney •

Master Linen Closet Makeover + Some Organizing Tips

October 13, 2021

*this post contains affiliate links.


Inside of our master bath, we have a small little linen closet which has become the second catch all in our home (first catch all is/was our master closet – stay tuned for this organization make over because I’m really hoping to finish it sometime in 2021, haha). Anyway, I’ve kind of been stumped on what to do with it because we have another linen closet right off of our loft that homes a lot of our extra linens and bathroom overflow. I just started piling some of the kids extra medical stuff in there (bandaids, thermometers, etc) and a few of our beach towels and one thing lead to another and it just became kind of a dumping ground for whatever didn’t have a home at the time.
It’s been on my to do’s LONG before Colly was born, but it just kept getting put on the back burner until July! *Yay*. I know C has been a little bit bothered with the state of it too, as he sometimes needs things in there for the kids (said bandaids and beach towels) and it’s just been a mess.  Here’s a little before pic for ya.


The first TIP I want to share for any organizing project – GO! DO IT! Stop putting it off. Obviously, time/money can be restrictions and things that legitimately hold us back, which I totally understand. I have been in both boats over the years. But you don’t need to spend a lot in order to get organized. The dollar stores/spots always have things you can utilize, and Target is a store I can always grab the $2 drawer organizers that come in 2 + 3 packs. Time might be tight too, but look at your schedule and see if you can carve out a day or even 2 hours over a week (or two, if its a big project) to just dedicate to that space. Getting motivated to start any organizing project is key in seeing your space finished! Envision it, and then set the time aside to make it happen! Slowly but surely, it will get done if you just S T A R T!
So once you’ve done that, take my next TIP to heart, as I feel it really hones in on how successful you can be with your organizing goal. Take a look at the space as a whole and ask yourself what you want with it. What kind of purpose can it serve you/your family? What’s the main function it can help you with in your home? 
Back to the closet at hand – for our family, I wanted to focus on the healthcare + bath time stuff in there (I also kept essential oils and other wellness things shoved in as well) so I knew I needed a few organizing products to home those in. I also thought about the towels and linens and didn’t want them all to be showing so I invested in some neutral bins/baskets to hold them.

I grabbed what I needed to at Target (…last year…. I know, I just preached about getting started but we had a bunch of curveballs, as did most, in 2020) so I had everything I needed when I started this project a few weeks ago. 
Another HUGE tip of mine would grab your ear buds, portable speaker, Alexa, Google Home…whatever!…and listen to something that inspires you. Music, a podcast, an audible book, anything! I always get in the groove to get working and the time goes by so fast when I put on my fave 90’s alternative station on Amazon music.


TIP: I always take everything out of the space (closet, drawer, cabinet, room) and give it a good wipe down. Magic erasers, all purpose spray (Thieves!), and some rags or paper towels. When you start with a clean slate, you’re on the right track to your project already.


After everything is cleaned out and wiped down properly, here comes the next TIP: start grouping. I always have one pile for donation/trash and then the other piles are what I plan to use in the space. For example, when I cleaned out my mom’s desk drawers recently I had a pile for: tools, pens, glue sticks, reading glasses, scissors, etc. It is so much easier to put away once you’ve done this. 


TIP: In addition to functionality (easy to access/find) and purpose (being able to help our family), another perk of being organized is (YES) the aesthetic. We all love a clean, pretty to look at space, right? To achieve this, I’ll also use a scaling system. I try to do this in every space I fix up if possible. So what do I mean by this? Creating some dimension across the shelves. I do this with incorporating different heights and textures with the baskets/containers and adding a pop of color and decor with a small plant (did this in my mom’s linen closet refresh too!). If you’re reorganizing a surface space, think about adding photo frames of different heights and throwing in a textured or glass piece of decor to offset it. There are tons of ways to do this, but these are my most simplified/cost effective ways.


TIP: Mixing and matching is great, but when it comes to actually hanging up clothing or organizing all of the same items in a row, I really like uniformity. For my mom’s linen closet (see below), she also had a side with a clothing rod that was holding up jackets and winter wear. It didn’t take much to make it look a LOT better, by just adding some hangers I had at our house that were all the same style and color. 
You may need to rearrange as you go and start filling in your containers, baskets, etc. with your “piles”.  

Last tip: once you have everything organized how you want – remember arrange + maintain.


Everything I used in our linen closet is linked HERE.


Everything I used in my mom’s linen closet is linked HERE.


I hope this helps! Go tackle that project!!!!

Filed in: Home, Organization, Uncategorized • by angmdisney •

Boys’ Room Makeover Reveal

October 5, 2021

AHHH!!!! I’m so so excited to share this with everyone today! Around Feb/March when we were finishing up Honey’s big girl room, we started talking about revamping the boys’ room for them. If you’re new, we have two boys: Conner (8) and Cole (6). They’ve been sharing a room for the last 4 years and while I absolutely loved their room (I’ve had the best time decorating it over the years and adding little touches here and there), it was definitely time to give it a refresh and incorporate what they’re wanting/needing since they are getting older. It was Conner’s room first, when we bought our home in 2014 and the little car decals were one of the first things we put up to make it a ‘big boy room’ for HIM. He was almost 2 and had started jumping out of his crib so we knew it wouldn’t be long before he was in a bed and transitioning away from a ‘nursery’.

It wasn’t their choice to share (they were so young and Honey would be needing Cole’s nursery) but they’ve never once complained. Sure, they argue, but they are the best little buds and truly enjoy sharing their space for now. I’m pretty sure if they were in separate rooms they would sneak into each others to be together because that’s just how they are.

The photo below is what their room was previously – they had a bunk bed which was a great space saver since it’s not a huge room, and then my husband DIY’d a fort around it with pvc piping, dowels, and store bought curtains. It was something they’ve enjoyed and had fun in until the day we took it down, but as they’re growing their interests are shifting and they had been asking for, “separate beds, right next to each other”. I found these frames on a steal of a deal back in March and scooped two of them up. We let them pick the theme (they agreed to Star Wars) and some of the decor accents I had been shopping for at Hobby Lobby…they have a great selection of SW stuff in store! I created a vision board with other things I had found on Amazon and went with that and slowly it all started coming together. Their previous room was black, white, and gray and I wanted to keep some of that for them since we wouldn’t be changing their bedspreads (from my fave shop, Beddy’s – you can use the code ANGDISNEY to save 20% off sitewide! We’ve been using Beddy’s since Conner was 3.5) but Conner had also requested blue so I knew I’d be incorporating that as an accent color.

I got lucky and found this Star Wars peel and stick wallpaper which just so happened to be white + gray with pops of light blue! We purchased 4 rolls to do their accent wall and then bought the letters for their names separately at Hobby Lobby. We spray painted them a royal blue color and added them above their bed. C also grabbed these strip lights and attached them to the backside of the frame and with the remote control (that they come with) they can switch them on and off and change through a variety of colors. It has definitely made one of the most exciting updates for them in this new space!!!

Tall Dresser | Light | Wallpaper
Moon Lamp

Let me back up for a minute though. We had shown them their bed frames and wallpaper online to get their approval, and as I mentioned they had a hand in picking a few of the decor items at Hobby Lobby, but other than that, the entire thing was a SURPRISE! My husband had the idea of asking my mom to have them over on a Friday night after school and stay until Sunday early evening so that we could cram in almost 2 full days of refreshing while they were gone. We picked out a date in May that would work for Gammy and finalized our plans. The video below is their reaction to coming home finding their room was entirely revamped and changed – it’s something I know I’ll rewatch each year because their excitement about it fills me up so much. It was better than Christmas morning! Honey also got really excited too and was thrilled to be hanging out with her bros in their new room.

Hooded Towels

They LOVE their Big Joes – this was an item my husband picked out and was definitely part of the surprise. The boys love gaming so we figured it’d be fun for them to sit here (next to each other!) in their chairs and play. We also made the executive decision to gift them a TV for this space – their previous room did not have one, but they have shown us how responsible they are the last 15 mo+, we decided to try it out for them. They do have restrictions and limits, and since installing it back in May, they have respected those boundaries.

Chair | Light Decal | Frames | Vadar Bank
Bookshelf | Blue Bins | Clock
Funko Pop Yoda

Their old shared dresser from IKEA was replaced with two tall standing chests. We got these tall dresser chests as an alternative for them, and I love that they’re a little lighter in color with the dark pull accents. They are super sturdy/well made. I was hesitant to get rid of their dresser because it was divided equal between them and served them really well, but we knew to free up space we’d need to ditch it (it’s also been with us since before Conner turned 2, so it was falling apart and had seen better days). The tall chests allow more freed up space, and since we purchased 2 of them they still each have their own drawers for uniform pants, underwear, socks, etc.

Beds | Bedding | Blue Throw Pillow | Wallpaper

Another item we parted ways with was their 6 cube bookshelf that we’ve also had since Conner’s nursery days (8 years ago!). We wanted something for books and more storage and opted for this shelf on the opposite side of their beds. It definitely isn’t a great space saver, but we figured the wall that it is on is more for entertainment and just housed their Big Joes, it wouldn’t be a huge issue. As they get older, they’ll need more storage space for their needs and interests so we went for it. They’re able to keep their soccer gear, extra smaller toys, headphones, their entire book collection and some knick-knacks on it. We bought them this fan and C installed it. I looooved their old light which was really inexpensive and cool looking, but as they’re getting older we figured they could use more air circulation 😉 I wanted something unique and not the standard, traditional fan. This one has the blades inside, and it also goes with the SW theme again with the constellation looking decorations on the outside. It has a remote and they think it’s pretty neat too. Definitely cools the room down as well!

We kept their floating shelves, some of the wall art/frames, and curtains. The frames we kept I printed art from one of my favorite small shops, Neverland Crew. If you’ve been following me, you know we are HUGE NCC fans and my kiddos have worn their their awesome pop culture inspired tees for years. What you may not know, is they also have an entire ‘home’ collection, which is where I grabbed this Vadar + Storm Trooper canvases from as well as the boys ‘dark side’ engraved. nightlight’. Check them out and support an amazing small, family owned and operated business!

I hope you enjoyed the refresh/makeover we gave the boys’ room and it inspires you to change up a space in your home! We definitely took our time planning and purchasing things which made it so much easier when it was time (months later) to put our plan into action! Now…to tackle the next room! 😉

Blue Throw Pillow | Yoda Plush

Filed in: DIY, Home, Motherhood, Uncategorized • by angmdisney •

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Welcome!

Welcome!

Hey and welcome to my little corner of the internet! I’m Ang Disney (yep, DISNEY!): a wife, mom of 4, and an entrepreneur. Some of my favorite things in life are Jesus, my home state, piano, HGTV + Food Network, swimming, iced coffee, and deal hunting! I also love music - literally just about every kind. My playlist jumps between worship, country, 90's, rap, rock, and even healing frequencies ;)

In this space I hope to inspire you. I genuinely enjoy sharing my fave mom hacks that I use in my every day, home decor, DIY, easy recipes, and attainable fashion for yourself + kids on a budget. Grab a cup of your fave drink and stay a while!

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Homemade Coffee Cake

The Best At Home Iced Lattes

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disneysinthedesert

The clockwise pour is essential 🧸🍂☕️ Sh The clockwise pour is essential 🧸🍂☕️

Shared this recipe step by step on my blog! Plus a maple butter version is on there too🧋✨🎃

www.disneysinthedesert.com
I just want to share that we are watching a miracl I just want to share that we are watching a miracle… which is the story of Colly’s life - right before our eyes 🥹🥲 Colly has Rett Syndrome, a rare and severe debilitating neurological disorder. For her current age, and the progression of the disease in her body - it’s truly mind blowing to witness her hitting BIG goals and overcoming huge feats. God gets all of the glory in this and we know with Him, all things are possible. Every day we are believing for more miracles for her… not just the big ones, but the small, seemingly insignificant ones that make such a difference in our lives. 

The determination and will this sweet girl has is so inspirational 🥹 She works so hard, thru tons of pain and struggles, every single day. Literally every hour of the day. Our older kids affectionately call her “the GOAT” - because she really is! 🐐🏆

I’ve recently had an influx of messages from parents just receiving this horrible, terrifying diagnosis. It can feel like a nightmare, and so overwhelming… there’s nothing to sugarcoat with the challenges in navigating this. But what I also want to say, is… don’t lose HOPE. Keep exploring every option out there, keep pushing for more (of everything — including answers, therapy, outside of the box ideas, etc). Your daughter will surprise you!!! There’s so much goodness still in store. Ultimately, God is still writing a beautiful story for her life. It’s filled with purpose and joy.

Mark 11:24
Today on the blog I am sharing my bedroom refresh! Today on the blog I am sharing my bedroom refresh!! After Colly’s diagnosis and a really hard season of life, this room slowly turned into a dark dungeon and a sad place for me. With feeling emotionally better these days (therapy + joining a grief group), I’ve decided to reclaim this space and let the light in again ✨ 

I also wanted to add some neutral colors, natural tones, and cozy textures to make it feel comforting. My goal was to make this little area my sanctuary to reset and *rest*. There’s a few spots to sit and enjoy some peace, too!

The whole room really comes together beautifully with the addition of my new King size @beddys! Truly a game changer as a parents of 4. We can tidy the whole room with just a quick zip! Beddy’s was also so kind to increase my share code to 25% off just for my followers for a limited time!!! (Code: ANGDISNEY)

Full tour + sources to decor, furniture, and more is now live at www.disneysinthedesert.com 🤎🕯️
Not ready to pull the trigger on Halloween decor j Not ready to pull the trigger on Halloween decor juuuuust yet, but I will pregame 😉 How fun and unique are these slippers that match the iconic @pillsbury cookies?!! 👻💜🎃

Everything is linked on my LTK shop + blog tonight!
Overly excited about this cute lamp I found for my Overly excited about this cute lamp I found for my kitchen!! Also a little sneak peek of the upgrades we did this spring to the counters, cabinet, and backsplash 👀 More on that soon!

Linked the lamp and bulb on my blog tonight! 💡✨
The cutest $4 graphic tees my girls have been wear The cutest $4 graphic tees my girls have been wearing all summer! Pair them with this pack of 6 colorful bike shorts ($13!) and you have multiple outfits for weeks!!! I showed how adorable they look on my blog tonight!! Find all of the links (blog + products) in my bio 🌼🎀🩵🍓🦋🍭
An amazinggggg show 🤠🏜️🎤🔥🌵 Got o An amazinggggg show 🤠🏜️🎤🔥🌵

Got out with some friends to see MW last night in PHX! We had great seats (thanks to the guy I married 😉) + the best time!!!
They were summery before… but we went a little f They were summery before… but we went a little further ☀️👙👗🍉⛱️🌊🍭✨

In my era of natural nails (the goal is to be fully natural with them - no salons + no UV lights!) but starting here. Just a colorful gel mani and allowing them to grow without tips. Save this for your next nail appt! 😎
Happiest Birthday to the OG Honey Girl 🍯🎈🎂

She’s made our lives SO much sweeter 🥹 It’s truly an honor and privilege to have a front row seat to her childhood, though I’m forever wishing time could slow down just a 🤏🏻 bit. Soaking it up and cherishing each stage we reach because I know it goes quick!!!

I have so many prayers for her for this next year. My biggest one though is that she continues to seek Jesus. I am believing that she will keep Him first and that His hope + joy carries her thru any and every challenge. 

Our special HunBun! What a beautiful miracle 🥹🌈💖 Born on the 9th day just like both of her parents… it’s our unique little bond! One more year until her golden birthday 🥹
How was this already over a month ago?! 🤯 Time How was this already over a month ago?! 🤯 Time is flying. I couldn’t skip over sharing about the last appointment with my girl, the curl queen herself, @lustrae_!!! ➿🩵 

We have been working for the last year to get my color to the ✨blonde of my dreams✨! We’re pretty much there and I’m obsessed!!! Did a little trim too to hopefully keep it growing (the length is there but shrinks up a ton bc of the curl). 

If you’re a local curly, you need to book with Lex!! I’ve had this hair for 30+ years now and am still learning new things thanks to her incredible tips and help! She will work magic on your curls and literally just the sweetest person ever!!! 🪄👑✨
What an incredible opportunity to go (live!!!!) on What an incredible opportunity to go (live!!!!) on @arizonasfamily yesterday! 🎥✨

We were able to share some of Colly’s story along with our fundraiser with @picazzositalian that’s supporting Colly’s pediatric therapy clinic, @bloomkidz_az 💚 In April, $1 of every dessert sold at all 6 stores is being donated here. We are so grateful to be able to give back to such an incredible organization that’s been monumental in Colly’s progress and unwavering in support to our family the last 2.5 years. 

Thank you to @cerretanews for taking the time to chat with us and to @elainavpr for always advocating for our family so generously and in such a special way!! 🤍 

#rettsyndrome #rettsyndromeawareness
If you’re still looking for an easy treat to bri If you’re still looking for an easy treat to bring to dinner tomorrow, try this!! The cutest 💛🐰💖🐇🩵

Wishing you the happiest Easter, knowing He did it for me and you ✝️🕊️
Colly works so hard 🙏🏻 At age 4 and by this Colly works so hard 🙏🏻
At age 4 and by this stage of this savage disease, eating by mouth (chewing and swallowing) plus gaining (and even maintaining) weight is extremely difficult. Additionally, most girls cannot use their hands for anything with purpose at this time as well 💔

Please join us in praying that Colly will continue to have hand strength + the ability to use them, that she can tolerate eating by mouth, that she stays seizure AND med free, and that she continues to grow and gain weight. Thank you friends!!! 🫶🏻 Forever grateful for this community who encourages and cares about us.
Obsessed with our new zebra blinds from @lustrowin Obsessed with our new zebra blinds from @lustrowinhome! This was a dream collab for me and it really elevated the windows in our family room, kitchen, and living room ✨ I love how these blinds easily allow for light to pour in during the day while still providing privacy at night. 

They have so many beautiful, modern, and stylish options of window treatments for any home! Use code “DISNEY” to save sitewide at Lustrowin - link in bio!

#ad 
#lustrowin
#homefinds
#homedecor
#windowtreatments
#modern organic
Just received this video from Colly’s PT 2 days Just received this video from Colly’s PT 2 days ago and have already watched it on repeat about 100x 🥹 The squeal of joy is something we don’t take for granted when much of her short life has been consumed with crying, anxiety, pain, and frustration. She genuinely seems so happy and joyful 🥹😭

Also can we also just take a second to acknowledge how much motor planning and brain power it takes to repetitively jump up and down like this?! THAT’S OUR GIRL!!!!! 💪🏻🧠✨

We believe in the power of prayer and humbly ask everyone reading this to please keep praying for her. I will always desperately want more for her, and I am believing in His perfect timing that it will happen. 

#rettsyndrome #rettsyndromeawareness
This is long, but worth a watch!! Colly has been a This is long, but worth a watch!! Colly has been absolutely CRUSHING Rett Syndrome this past month. Literally saying, “Rett who?!?!” 🤯🤗👊🏻 November we witnessed so many miracles happening for Colly. It wasn’t without some bumps, but we have SO much to be thankful for. 

By age 3.5 (she’s so close to 4 now!), most girls with this disease no longer have purposeful use of their hands. Every day she’s able to still use them in any capacity is a miracle, but the fact that she’s doing even more beyond that…is almost unbelievable. 🥹 She is not doing what medical text says she should at this stage of the disease. 

We wouldn’t be where we are today without her massive team at @bloomkidz_az where she receives 5 different therapies M-F full time, and the last couple of months adding in weekly appointments with @dr.connerbor. The impact all of these treatments are having on her is huge, and at this point, essential to her development and continued progress. 

It’s so exciting to be able to post happy + encouraging updates about Colly after so much darkness, sadness, and confusion. Please pray we are able to keep her on this stable track of good health, pray for her team to have the wisdom they need to continue to help her, and pray for even more strength for her body and brain! 💪🏻🧠✨ We can’t thank you enough for cheering our family on as our sweet little girl continues the fight of her life.
The most healing Halloween + diagnosis day yet 🕊️

It’s not a secret that I still carry a heavy grief over Colly’s life. Ultimately, the prognosis of Rett is very dark but seeing her progress since she was diagnosed is nothing short of inspiring. We have so much hope for her future and although there is still much uncertainty, she has an amazing team of therapists, doctors, and supporters. She has treatment plans and goals. She has a family who loves her and will never stop pushing for more for her. 

I was telling a friend recently that this day will always be a reminder of the ending of the dreams/life I saw for her, but how can I wallow in sadness when there is so much joy? Colly IS that joy ✨🪽

God has revealed a lot to me these last two years and has pulled me out of a really scary pit. He’s wiped my tears, softened my heart, and given me strength to be a better mom, caregiver, and person for Colly + my other children. Instead of dread, my excitement for life is returning and I can’t wait to see where we’ll be next Halloween 🤍
Really they are so much fun 🦇💀🎃👻 I lov Really they are so much fun 🦇💀🎃👻 I love making my iced coffee at home in them!

Some have sold out but there are a few styles left! Linked on my blog as well as my LTK shop (in bio!) www.disneysinthedesert.com
Finally sharing the small update I did earlier thi Finally sharing the small update I did earlier this year in Colly Girl’s room! I used a wall stencil from Amazon + the colors are Snowbound and Warming Peach by @sherwinwilliams for the paint 🤩 

I’m personally obsessed with how it came out!! More details on my blog tonight (link in bio)! ☀️🧡🧸☁️
We are beside ourselves and elated 😭😭 If you We are beside ourselves and elated 😭😭 If you are new here, Colly had a handful of words before her second “Rett Regression” in 2023 where she lost them all and went completely silent. A few of those words returned this year with the regression ending (praise the Lord) but “Dad” was never one of them. 

She had said “ddddaaaa” in January of this year but not much came after that. Fast forward to the end of this month, and now when we ask her to say it on command - she seemingly is doing just that 🤯🤯🤯🤯🤯🤯🤯 Absolutely blown away. I swear she’s even saying, “eeeee” at the end a few times as if to say “daddy”! 

We were told Colly would never verbally communicate amongst so many other heartbreaking (and a slew of other WAY MORE terrifying) things that accompany this disease. Honestly, verbally talking fell off of our wishlist a long time ago because we’ve seen her face many other struggles that make every day life so much more challenging for her. My hope has been renewed lately and I’m adding it back onto my dreams for her. 💫☁️ I know she will likely never verbally speak in sentences, but to have a few words would be incredible and I’m sure would do wonders for her anxiety and frustration levels as well. 

Continued in comments 🥹

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