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Disney's in the Desert

Mom Hack: Label Making

January 19, 2022

*This post contains affiliate links, which means I make a small commission if you purchase through them, at no extra cost to you.

It’s pretty well known now that I am kind of obsessed with being organized, but something that always elevates any project I do is my label maker. I’ve owned a few over the years, and while they’ve all been helpful and served a great purpose, this pink one that I’ve been using since last summer is definitely my favorite.

I found it by accident, searching Amazon for another organizing tool, and I’m so glad I did. I LOVE that it has an app that I can connect to my phone. It comes with some pretty additions (like adding a border, different fonts + sizes for your text, and even little graphics! The kids especially love this feature when it comes to their labels). I’ve bought an extra pack of rolls for it too, because with as much as I use it, it’s nice having a back up supply.

I thought it would be helpful to share a few of my fave ways I use my label maker in my home and with my kiddos too.

  • Bag tags: the kids have a bunch of the Ryan + Rose cutie tags on their overnight bags and duffle bags for sports, and they come with a blank circle to add a name/info. I print out a little sticker label and add it to that, pop it back in and their bags are individually labeled (which is really helpful to tell whose is whose, since both boys and both girls have the same bags).
  • Kitchen labeling: I use these bamboo organizers in our zipper bag drawer, and I’ve added a label to each organizer so I know which bag is which when I’m packing snacks, lunches, or putting away extra/left over food. They’d also be great for labeling clear spice or food containers, too!
  • Storage bins: earlier this month I shared how I’ve decluttered space for the new year with these bins, but labeling each bin has been crucial when I’m packing them away to see what is in each. Even though they’re clear and see through, things are squished in and it’s nice to know what I’m grabbing for or forgot about later as months go on just by looking at the label.
  • Bathroom + closet organization: In our master bath we have a linen closet where we keep extra first aid supplies, (of course) towels, and other bathroom products. I’ve used labels to help the kids (the boys can read and Honey is right behind them) where these things we don’t often reach for, but sometimes need, are located. I’ve also labeled some stacking drawers in my closet for extra clothing items I don’t have room for in my closet or dresser drawers. I love not having to open each drawer to know what goes where.
  • Desk drawers: We have organizers inside our bedside tables and the kids’ school desk drawers. Labeling where colored pencils go (and similar items), helps keep them stay tidy because everything has a place and ‘home’! It truly has prevented them from just throwing things in wherever.
  • Back to school: I had this label maker when the kids went back to school in August and it was amazing to have when it came to labeling all of their supplies!!! I saved so much time printing out their individual names all in 1 batch for what they needed to bring in that first week. As school has continued, I still find myself making labels with their names for projects, field trips, more supplies, etc!

I hope this helps and gives you some ideas of how to get labeling! Usually the biggest challenge is just starting, so hopefully this can inspire you and give you a little push if needed!!

Filed in: Home, Mom Hacks, Organization, Uncategorized • by angmdisney •

10 Tips for Decluttering (and cleaning!) in the New Year

January 2, 2022

Happy New Year friends!! Can you believe it’s here already? I’m definitely welcoming in this new year and setting some reasonable, attainable goals. What about you?! #bye2021

You know organization and keeping my home and family spaces tidy, but there are certain areas that have kind of just left sitting. Things would pile and it just seemed easier to close the door and look away, lol. We’ve all been there, right?

I wanted to give a few ideas in this post more focused on areas that can be easily neglected. This won’t be a ‘wash behind your washing machine!’ post, but more of things we touch daily that we can do things with each week/month in order to maintain and NOT let the build up happen. Some of these are just things I know I have left sitting and I know I’m not using, so donating or disposing of it will help clear some space for the new year.

  • 1. Stock up on Folex. I swear by this stuff! I’ve been using for the last 2 years on our carpeted spaces and our laundry (yes, I use it on our laundry! I have not had any issues at all!) For deep/stubborn stains, I will spray a little on, let it set, then scrub. I will spray on a little more and then throw it in the wash as normal.
  • 2. I have purchased a handful of these inexpensive bins from Target. Not only do I love that they come in a few styles (and are pretty to look at!) but they helped me declutter our holiday decor this year as well as some things in our downstairs linen closet. I chose what I wanted to put in them and only kept the things that I know we will use in 2022.
  • 3. Clean out your kids backpacks or better yet, have them help you do this. It’s a great time to do this since it’s still holiday break. Cole keeps his backpack pretty tidy, but Conner is my kid I have to keep an eye on with this. The smaller zipper pouch tends to be where they store a lot of things over the school semester along with the occasional dirt, etc. I make them clear out whatever is trash/unimportant and then throw them in the gentle wash cycle. I also bought the boys each these wallets where they can store their school IDs, money they take for sno cone days, etc. and it helps declutter this pouch as well.
  • 4. Time to clean your linen closets going into 2022. Donate/dispose of any linen (beach towels, shower towels, blankets, sheets etc) that may have seen their last day or that no one has touched in over 6-12 months. I know sometimes some of these things can hold sentimental value, and if that’s the case maybe store it away elsewhere or in another bin that you’re going to keep in storage. I now only keep blankets/towels that we regularly use as a family and it is so much less overwhelming. I can also see what we have and therefore it gets used so much more!
  • 5. Another thing I took care of going into this new year is something you might not really think about, but if you have school aged kids like I do, it’s probably something they’re often touching. In my kids’ school/homework desk we have a bunch of used pencils with erasers broken off, pencils sharpened down past the point of barely being able to even hold it, and lots of mechanical pencils with no lead. I tossed all of them and replaced them with every teacher’s favorite pencils and best part: no lead to refill!
  • 6. In my kitchen, I went thru all of our large utensils (spatulas, serving spoons, tongs, wooden stirrers, etc) that we haven’t used and donated them. It truly was not necessary to have as many as we had and I kept the ones we use weekly for meals.
  • 7. This is something I started doing in 2021, but I get my car washed the first of every month (If I can’t go on the 1st, then sometime before the 5th). I make it a priority to do this, because as a mom of 4, my car can become pretty overrun with kids crumbs, shoe tracking, and other fun things 😉 I found an inexpensive way to do this is by going to the semi-self service car washes (usually around $7 for exterior) and then I use their free vacuums and the kids help me suck up all of the stuff on the floors and seats. I plan to continue doing this into 2022 – it’s a game changer and my car has benefited from it so much. I know by the end of the month (when it’s starting to show gross-ness again ;)) that the car wash is right around the corner and it helps me not feel overwhelmed.
  • 8. There are several different bins, baskets, and containers I love for our closets, and I’ve linked a few of them on this post. The wooden ones are really sturdy and actually pretty deep – I picked up a few more of them plus the plastic kind with the drawers for our master closet clean out I’m determined to finish working on before January is over!
  • 9. I plan to do a blog on my pantry sometime this year (I know, long overdue!!) but if you’re needing some help on where to start, I have all of my favorite products I use to organize my pantry linked in this post, BUT one way I keep things that aren’t in containers still staying fresh and looking uniform are with these cute chip clips. I just bought another pack because the ones I’ve had over the years were dwindling down and some had cracked (they’ve gotten so much use over the last 4 years though!). Highly recommend them!
  • 10. This is another thing I do all year long but I thought it would be helpful to close out my tips with it. Every Monday, I wipe down and disinfect all of our electronics. It’s a really good habit to get into and bring along with you in the new year! Definitely one of those ‘it’s a new week!!!’ things for me.

I hope this helps motivate and inspire you while you’re doing some NY decluttering!! I’ve already implemented a few of these before today and my house feels so much better and the kids have more room too. I know it can sometimes be hard to start these things with life going at such a fast paced all the time, but I promise you once you start, you’ll find a good groove and you won’t want to start! Progress is always so motivating for me. Happy cleaning!

Filed in: Holiday, Home, Organization, Uncategorized • by angmdisney •

Holiday Gift Guides

December 14, 2021

Well friends, I’ll be honest — I totally intended to post this so much sooner! I started working on it well before Thanksgiving but time has been flying! My hope now is that you’ll be able to get some ideas for any last minute shopping or if you’ve been stumped on what to get for someone special/a friend/family member, this sparks an idea!

I’m going to share my “Mama” gift guide because there are some of my favorite things on here. We work so hard and some of these things help me unwind after a long day, and I’d love for another awesome mama to be able to enjoy one of them too!

GIFT GUIDE: MAMA

Candle // Clip // Mug // Toothbrush // Slippers // Candle // Cordless Vacuum // Camera

*MAMA RECAP* The Burst toothbrush is something I’ve been using for a full year now. C got me one for Christmas two years ago and I have to admit, I was less than thrilled – but not for the reason you may think (“yay, toothbrush…”) It was really just because I was like, “I’m so pressed for time, I don’t have any spare to learn another tool”. BUT! Let me tell you, that couldn’t have been further from the truth. You basically just open the box and it’s ready to use. SO EASY, and it’s done wonders on my poor gums. This toothbrush is the best one I’ve ever owned, hands down. I have been eyeing this mug for a while, I love that it keeps your mug hot, leaving you making 0 trips to the microwave to reheat your cold coffee after chasing kids all morning. It’s no secret these candles are my fave. This scent specifically is one I burn all fall and winter here. Last but def not least, I have to tell you about these slippers. I got them on sale a few months ago and they would make an amazing gift for any mama (or BFF!) I am obsessed. I love putting them on during Sunday mornings when we’re having a slow morning at home (making breakfast, watching the kids play outside) and at the very end of the night before bed!

GIFT GUIDE: HER

Tweezer Set // Scrunchies // Fanny Pack // Sunglasses // Scarf // Nail Polish // Jewelry Holder // Tumbler // Dryer Brush

*HER RECAP* I’ve never owned a hair brush/dryer in one, mostly because it wouldn’t make sense for my hair type, but I know SO MANY who own this one and rave about it constantly. It’s currently on a really good deal for the holidays! This jewelry holder is stunning in person (I’ve owned it for the last 3 years!) and it would make a sweet gift for someone you care about. I love the concrete look and it actually holds quite a bit. I keep it out on my dresser because it also doubles as a home decor piece IMO! Olive and June make my fave nail polishes. The colors are 10/10 and I would say they are very comparable as far as durability/lastability (is that a word? I don’t think so! haha) to Essie polish. I know everyone is loving the Stanley tumblers lately, but they’re super hard to come by due to stock/supply, so I found this tumbler as an alternative and think it’s just as cute!

GIFT GUIDE: GRANDMA

Doormat // Slippers // Canvas Bag // Keychain // Blanket // Mug // Always Pan // Frame // AirPod Holder // Echo Show

*GMA RECAP* The Always Pan makes an excellent gift for ANYONE but I recently just gifted my mom one for her birthday and it makes a great gift for someone who spends a little or a lot of time in the kitchen, trust me. Even if you’re only making bacon and eggs once a week, the Always Pan heats everything proportionally in your pan (not just the middle!) and clean up is a breeze. It truly does replace all of your other sautee/frying/sauce pans! I added my fave Target frames on this list because for under $19 you can get the largest size (18×20) and print a photo of your kids or your kids and Gma and place it in this beauty. I love the natural wood look, which makes it super easy to add to any home. This doormat I thought was super cute and probably any Gma would enjoy 😉 This is the same shop we got our ‘lots of kids’ doormat from too!!

GIFT GUIDE: HIM

Portable Charger // Slippers // Electric Razor // Wyze Camera // Brumate // Yeti // Always Pan

*HIM RECAP* The last time I checked, these Yeti coolers were on sale in select colors: score!! Again, the Always Pan is making the list in the color Char. I gifted C one of these a couple months ago and it’s his go to on the weekends. These slippers we don’t own, but they look luxurious 😉 The portable charger is a must for really anyone, but for someone like my husband who works from his phone all day long, it’s super useful and practical. I added our Wyze camera to this list too, because it’s probably C’s fave purchase from 2021. We sleep so much better at night with our Wyze watching our home!

GIFT GUIDE: THE COOK

Mixer // Nespresso Machine // Baking Sheet // Utensils // Knife Set // Air Fryer // Cake Stand // Cookbook // Perfect Pot

*COOK RECAP* Ok so it’s not a secret, I really love being in my kitchen!! Fun gadgets and pretty cookware make it that much more enjoyable for me. If you know someone who likes baking and cooking, I highly recommend all of these things!! How pretty is that air fryer, too!? My go to cookbook for easy weeknight meals is the Half Baked Harvest cookbook and I recently discovered these pink baking sheets from Anthro! LOVE LOVE!! The knife set is one I’ve owned for a couple years now as well and they’re still just as sharp as the day I got them and they wash really well too.

GIFT GUIDE: HOMEBODY

Popcorn Maker // Firestick // Diffuser // Monopoly // Beanie // Lounge Pants // Blanket // Bath Bomb

*HOMEBODY RECAP* Another thing that is near and dear to my heart…being HOME!! I knew I wanted to do a homebody gift guide this year and added a couple of my cozy faves. These lounge pants I bought for myself while I was pregnant with Colly last year, and while they’re not maternity, they worked so well and stretched and grew with me. I also loved them post partum and even post post partum now!! I wear them out and about too when I’m running errands and am comfortable the entire time. Some styles have pockets and some don’t, but I now own them in all my fave colors, so I hiiiiighly recommend these! Love the Casaluna brand and this gorg throw blanket from the line. I recently upgraded the diffuser in our room to this one and it is really quiet and sleek. The monopoly game was a little bit of a splurge but I figured when we’re not playing it, it can also look pretty on a bookshelf or our coffee table! 🙂

So, there you have it! I didn’t get around to kids gift guides this year with it being such a busy year and juggling work and the kiddos. We are keeping it pretty simple this year: the boys are getting a gaming console they’ve wanted and Honey is getting a new scooter. We’re also giving them a handful of books which I plan to post about pretty soon as well, so stay tuned! Happy Holidays!!

Filed in: Gift Guides, Holiday, Home, Style, Uncategorized • by angmdisney •

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Welcome In!

Welcome In!

Hey and welcome to my little corner of the internet! I’m Ang Disney (yep, DISNEY!): a believer, wife, mom of 4, and an entrepreneur. Some of my favorite things in life are brunch, HGTV, white chocolate, long walks through Target, and 90's music - if that's you too… let's be friends!! :)

In this space I hope to inspire you. I genuinely enjoy sharing my fave mom hacks that I use in my every day, home decor, DIY, easy recipes, and attainable fashion for yourself + kids on a budget. Grab a cup of your fave drink and stay a while!

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@disneysinthedesert

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What an incredible opportunity to go (live!!!!) on What an incredible opportunity to go (live!!!!) on @arizonasfamily yesterday! 🎥✨

We were able to share some of Colly’s story along with our fundraiser with @picazzositalian that’s supporting Colly’s pediatric therapy clinic, @bloomkidz_az 💚 In April, $1 of every dessert sold at all 6 stores is being donated here. We are so grateful to be able to give back to such an incredible organization that’s been monumental in Colly’s progress and unwavering in support to our family the last 2.5 years. 

Thank you to @cerretanews for taking the time to chat with us and to @elainavpr for always advocating for our family so generously and in such a special way!! 🤍 

#rettsyndrome #rettsyndromeawareness
If you’re still looking for an easy treat to bri If you’re still looking for an easy treat to bring to dinner tomorrow, try this!! The cutest 💛🐰💖🐇🩵

Wishing you the happiest Easter, knowing He did it for me and you ✝️🕊️
Colly works so hard 🙏🏻 At age 4 and by this Colly works so hard 🙏🏻
At age 4 and by this stage of this savage disease, eating by mouth (chewing and swallowing) plus gaining (and even maintaining) weight is extremely difficult. Additionally, most girls cannot use their hands for anything with purpose at this time as well 💔

Please join us in praying that Colly will continue to have hand strength + the ability to use them, that she can tolerate eating by mouth, that she stays seizure AND med free, and that she continues to grow and gain weight. Thank you friends!!! 🫶🏻 Forever grateful for this community who encourages and cares about us.
Obsessed with our new zebra blinds from @lustrowin Obsessed with our new zebra blinds from @lustrowinhome! This was a dream collab for me and it really elevated the windows in our family room, kitchen, and living room ✨ I love how these blinds easily allow for light to pour in during the day while still providing privacy at night. 

They have so many beautiful, modern, and stylish options of window treatments for any home! Use code “DISNEY” to save sitewide at Lustrowin - link in bio!

#ad 
#lustrowin
#homefinds
#homedecor
#windowtreatments
#modern organic
Just received this video from Colly’s PT 2 days Just received this video from Colly’s PT 2 days ago and have already watched it on repeat about 100x 🥹 The squeal of joy is something we don’t take for granted when much of her short life has been consumed with crying, anxiety, pain, and frustration. She genuinely seems so happy and joyful 🥹😭

Also can we also just take a second to acknowledge how much motor planning and brain power it takes to repetitively jump up and down like this?! THAT’S OUR GIRL!!!!! 💪🏻🧠✨

We believe in the power of prayer and humbly ask everyone reading this to please keep praying for her. I will always desperately want more for her, and I am believing in His perfect timing that it will happen. 

#rettsyndrome #rettsyndromeawareness
This is long, but worth a watch!! Colly has been a This is long, but worth a watch!! Colly has been absolutely CRUSHING Rett Syndrome this past month. Literally saying, “Rett who?!?!” 🤯🤗👊🏻 November we witnessed so many miracles happening for Colly. It wasn’t without some bumps, but we have SO much to be thankful for. 

By age 3.5 (she’s so close to 4 now!), most girls with this disease no longer have purposeful use of their hands. Every day she’s able to still use them in any capacity is a miracle, but the fact that she’s doing even more beyond that…is almost unbelievable. 🥹 She is not doing what medical text says she should at this stage of the disease. 

We wouldn’t be where we are today without her massive team at @bloomkidz_az where she receives 5 different therapies M-F full time, and the last couple of months adding in weekly appointments with @dr.connerbor. The impact all of these treatments are having on her is huge, and at this point, essential to her development and continued progress. 

It’s so exciting to be able to post happy + encouraging updates about Colly after so much darkness, sadness, and confusion. Please pray we are able to keep her on this stable track of good health, pray for her team to have the wisdom they need to continue to help her, and pray for even more strength for her body and brain! 💪🏻🧠✨ We can’t thank you enough for cheering our family on as our sweet little girl continues the fight of her life.
The most healing Halloween + diagnosis day yet 🕊️

It’s not a secret that I still carry a heavy grief over Colly’s life. Ultimately, the prognosis of Rett is very dark but seeing her progress since she was diagnosed is nothing short of inspiring. We have so much hope for her future and although there is still much uncertainty, she has an amazing team of therapists, doctors, and supporters. She has treatment plans and goals. She has a family who loves her and will never stop pushing for more for her. 

I was telling a friend recently that this day will always be a reminder of the ending of the dreams/life I saw for her, but how can I wallow in sadness when there is so much joy? Colly IS that joy ✨🪽

God has revealed a lot to me these last two years and has pulled me out of a really scary pit. He’s wiped my tears, softened my heart, and given me strength to be a better mom, caregiver, and person for Colly + my other children. Instead of dread, my excitement for life is returning and I can’t wait to see where we’ll be next Halloween 🤍
Really they are so much fun 🦇💀🎃👻 I lov Really they are so much fun 🦇💀🎃👻 I love making my iced coffee at home in them!

Some have sold out but there are a few styles left! Linked on my blog as well as my LTK shop (in bio!) www.disneysinthedesert.com
Finally sharing the small update I did earlier thi Finally sharing the small update I did earlier this year in Colly Girl’s room! I used a wall stencil from Amazon + the colors are Snowbound and Warming Peach by @sherwinwilliams for the paint 🤩 

I’m personally obsessed with how it came out!! More details on my blog tonight (link in bio)! ☀️🧡🧸☁️
We are beside ourselves and elated 😭😭 If you We are beside ourselves and elated 😭😭 If you are new here, Colly had a handful of words before her second “Rett Regression” in 2023 where she lost them all and went completely silent. A few of those words returned this year with the regression ending (praise the Lord) but “Dad” was never one of them. 

She had said “ddddaaaa” in January of this year but not much came after that. Fast forward to the end of this month, and now when we ask her to say it on command - she seemingly is doing just that 🤯🤯🤯🤯🤯🤯🤯 Absolutely blown away. I swear she’s even saying, “eeeee” at the end a few times as if to say “daddy”! 

We were told Colly would never verbally communicate amongst so many other heartbreaking (and a slew of other WAY MORE terrifying) things that accompany this disease. Honestly, verbally talking fell off of our wishlist a long time ago because we’ve seen her face many other struggles that make every day life so much more challenging for her. My hope has been renewed lately and I’m adding it back onto my dreams for her. 💫☁️ I know she will likely never verbally speak in sentences, but to have a few words would be incredible and I’m sure would do wonders for her anxiety and frustration levels as well. 

Continued in comments 🥹

#rettsyndrome #rettsyndromeawareness
Switched out the drum coffee table we’ve had for Switched out the drum coffee table we’ve had for a few years for this space saving, fluted one! It’s more sturdy (the drum slid around a lot) and also goes with the room better IMO 😍

It’s currently 20% off and I shared more deets about it on my blog + LTK shop tonight (in bio) ✨

#homedecor #cozyvibes #homestyle #arizonahomes
Summer break ended almost 3 weeks ago for us, but Summer break ended almost 3 weeks ago for us, but the temps will be summer-y for a long time to come 🥵🔥 If it’s really hot where you live and your kids love 🍉, try this treat!

Only 3 ingredients and so simple, but I did list the “how to” on my blog (link in bio!) 🍉🍧💚
So much can change in one year 🥹❤️‍🔥 So much can change in one year 🥹❤️‍🔥

In June 2023, we were 7 months into a devastating diagnosis - which would be Rett Syndrome, a rare neurological disease that is a whole body disorder and affects every single thing the body does for us voluntarily. We were told Colly may never walk, she would face severe motor challenges, have so many limitations of her life, and worst of all, a shortened life span. She was also in the midst of her Rett Regression, which is where children rapidly lose any acquired skills they DO have (basic things - like using their hands and swallowing food). It also causes so many issues with mood, breathing, sleep, and much, much more. The only way to put it is non stop suffering, and absolutely gut wrenching. 

One year later and I think we can say Colly is out of her regression and new skills are emerging. In June of 2023, she was just learning to tolerate more time standing up and attempting assisted steps with a walker and bearing weight on her feet. Her mood has improved so much by gaining this independence of walking where she wants and she seems so much more stable. 

“Believing gets hard, when options are few” has never felt so real in my life. I am pretty sure I was circling the drain and at the bottom of the bottom in June 2023. Life was so hard, DEPRESSING, scary, and uncertain. I refuse to give up on God though, because He doesn’t give up on me. While we know Rett is a savage beast, we are believing Colly will continue to defy the odds and she WILL keep surprising us 🥹💫 If you asked me last year if she’d be walking next June, I’d probably try to sound hopeful but I would tell you it was maybe *hopefully* going to still happen in a year or two. AND LOOK AT HER GO!!

If you are in your circling moment, just hang on. Miracles happen every day, EVEN IF it’s not in the way you or I pray about. I know the author of Colly’s story is STILL writing a beautiful one, so I’m going to trust and hold onto that. 

Ephesians 3:20

#rettsyndrome #curerettsyndrome #rettsyndromeawareness
@beddys Summer Launch is kicking off TODAY! 🥳🎉

Ella & Ryan (shown on my bed, here!) are two new colors joining the line up of best-selling Beddy’s at their lowest price point. Not only are they the most wallet-friendly styles, but you can save even more with my *limited time* INCREASED discount code + free shipping!!! Use code ANGDISNEY for 25% off 6/4-6/11! 🤍 

If your bedding could use a little upgrade, this is the best time to shop! We have been using Beddy’s for almost 8 years and couldn’t love and recommend them more!!!!
Last min teacher baskets/gifts! I put these togeth Last min teacher baskets/gifts! I put these together for the kids’ teachers a couple of weeks ago for Teacher Appreciation Week, but they’d be great as an end of the year treat too! I made one for the girl + guy teachers, because they do have both this year!!! Linked everything on my blog tonight with more deets (in bio)! 🍎💕👩🏻‍🏫📝
Definitely a memory made though 🙃😆⚾️ . Definitely a memory made though 🙃😆⚾️

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#momlife #momof4 #momofboys #momofgirls #motherhood #momlifebelike #momproblems
With today being #rarediseaseday, it felt very rig With today being #rarediseaseday, it felt very right to share this now. In the beginning of January, we had the opportunity to discuss one of the first pediatric gene therapy trials for Rett Syndrome happening NOW in the USA!! It is a very exciting time and we are cautiously optimistic about our daughter, Colly, having the chance to receive this life saving treatment. 

We were also so thankful to chat about our fundraiser with @picazzositalian which donates $1 of every chocolate chip cookie dessert sold to @rsrtig (which is the only foundation solely dedicated to the cure) and how raise awareness about how this devastating disease has impacted our sweet girl and  so many others who are suffering from it. 

We need this cure!! Without it, Colly will continue to struggle for life’s basic necessities - BREATHING, eating, sleeping, walking, talking and using her hands. Rett is a severe neurological disease that affects every aspect of her life, everything our brain tells our bodies to do for us is disrupted for a girl with Rett Syndrome. 

Full video is in the link in my bio if you’d like to watch more! BIG thank you to @elainavpr for facilitating this for us, and to @arizonasfamily for allowing us to share 🤍

#rettsyndrome #rett #rettsyndromeawareness #curerett
Happiness comes from a fresh set these days ❤️ Happiness comes from a fresh set these days ❤️‍🩹 Bookmark it for next year! 🏹💘💌
Loved these light fixtures we’ve had in the loft Loved these light fixtures we’ve had in the loft, especially because they aren’t hard wired. However… I hated the cord - so kind of defeated the purpose. I cut the cords and added these battery powered lights and problem solved! 💡 Also added some different battery operated ones to our olive tree to give it a little shine! ✨ 

Linked both of these on blog and LTK tonight (in profile)!
My kids’ birthdays have ALWAYS been emotional fo My kids’ birthdays have ALWAYS been emotional for me. I cry every year on the day that they turn a year older. That reality hits so much harder with Colly, and the fragility of her life. The “bittersweet” of a new year: what it symbolizes and how time moves on for others, but it really doesn’t for Colly. I’m really trying to still be grateful, even through all of the hard. I just wish things were easier for her. I have to keep trusting that God’s plan is so much bigger and better than mine. 

I love you, my angel, Sweetpea Girl 💗 Happy 3rd Birthday.

#rettsyndrome #curerett #rettsyndromeawareness
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