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Disney's in the Desert

Mom Fave Monday: Dreamland Baby Co.

March 7, 2022

This post may contain affiliate links, which means I make a small commission if you purchase through my link, at no extra cost to you. 

Last summer I shared this awesome small business when Colly was moving to her crib in her nursery from the mini crib in our bedroom. Their weighted sleep sacks are a game changer and made the transition SO much smoother and we’ve been big fans of this company ever since!

We recently received one of their toddler weighted blankets for Honey, which are for toddlers and kids ages 3+/30 lbs+. Hun is our night owl, always-last-to-fall-asleep child, and having this blanket with her at night is changing this for her! Its 4 lb weight provides deep pressure stimulation to help naturally reduce anxiety, alleviate sensory overload and promote healthy sleep patterns. We can already see this difference in using it vs. not, as she’s so much more relaxed in her bed. It’s also been nice for us to not have to re-tuck her in a handful of times once she goes to bed since using her Dreamland weighted blanket too!

We (of course!) love the design – Honey’s fave color and the stars are so sweet too! It also comes in a gray colorway as well. It has 2 different fabrics: a cozy micro-fleece on one side, and Minky cooling material on the other, making it perfect for use while sleeping, napping, or just lounging around!

Right now Dreamland Baby is hosting a semi annual sale – 20% off sitewide! You can use my link and the code DISNEYS to receive the discount from March 7-13th! If you have an infant (or even toddler!!) I highly recommend checking out their weighted sleep sacks, swaddles, and jammies! For the older kiddos these weighted blankets are great for a little security and comfort!

Since Honey turned 4, I’m no longer laying her down for naps – but this blanket has helped her relax during her time at home/when she’s not at preschool. She will voluntarily just lay on top or under it and get comfy and pass out on her own. Even though she’s no longer a toddler, it’s still important for her to catch up on some rest when her body is telling her it’s necessary. With the Dreamland Baby weighted blanket, she’s able to do that when she needs (which is also a nice break for Mama 😉 )

Filed in: Home, Mom Hacks, Motherhood, Uncategorized • by angmdisney •

Home Extras: Organized Tiny Closet

March 3, 2022

Right off of our loft, which is in between our bedroom and the kids’ bedrooms, is a tiny little linen closet. It only has a couple of shelves, and is not very deep, but I thought I’d show you how we use it (and not just for linen!) to better serve our family. We keep a lot of our ‘extras’ here!

Bathroom Extras

Here’s the fact: it is organized – but even above that, it is functional for US! We keep overstock/overflow from our two upstairs bathrooms so that when we run out of shampoo, bath products, toilet paper, etc, we don’t have to rush downstairs (or even to the store) for more.

Quick Clean Up Help

I like to keep extra cleaning products in this space too. All purpose spray, bathroom cleaner, and carpet cleaner because kids but really because you never know when a mess might happen. It’s come in handy especially in the middle of the night if someone gets sick, has an accident, or something else unexpectedly happens. I also keep a small hand vacuum in here (with the charger!) in here too for a quick clean up situation. I’ve always kept these products on a shelf that’s higher so that a baby/toddler who can open a door can’t have access to it. Our 3 bigger kiddos are now old enough that they know better to “accidentally” get into anything in here they shouldn’t and actually can grab something for us if we need them to.

Linens (of course!)

Of course, extra towels, throw blankets, and pillows are stored in here too. We do have a couch and TV in our loft so it’s nice to have easy access to these things for a movie night or just getting comfy and relaxing. I use these deeper baskets from Target to hide them and depending on the size of the throw, I can get 2 in each.

I highly recommend a system like this if you have the space – it doesn’t need to be a big space, even if it’s just a corner or a shelf somewhere off of your main living space.

I’ve linked the baskets and bins I’ve used on this post. I hope this inspires you give the ‘extras’ in your home a little space and in reach for easy accessibility!

Filed in: Home, Mom Hacks, Organization, Uncategorized • by angmdisney •

February 2022 Recap

March 2, 2022

Month 2 of 2022 in the books!! If you’re new, in this series I wrap up the previous month for our family every first of a new month! I don’t always share about the kids individually unless something big has come up for them or worth sharing – it’s just kind of a ‘free share’/’catch up’ on us and what we’re doing, accomplished, or working toward! I also think it’s great to have to look back on one day when everyone is grown up and flown the nest 😉

Colly

Colly has been going through a rough time with her teeth – she went from 0 to basically 7/8 in a matter of a week, which is similar to what Honey did (both boys had a bunch of teeth by 10 months – the girls were 12-13 months by the time one broke thru finally!) So we’ve been trying to do a few different things to keep her happy/comfortable aside from Tylenol. I picked up these drops that are to be swallowed and then some teething oil for her gums. Poor thing has just been in so much pain!

Boys’ Birthday Party + Well Checks

In January, we celebrated 3 of our 4 kiddos turning another year older. It was a lot 😅 We wanted to have a party for the boys since it had been since 2018 that they had a party with friends, but there was no way we were going to be able to swing it that same month. So we opted to do a little shindig in Feb, and they had so much fun! We went somewhere they they could do go-karts, jump on the massive trampolines, and zip line. It was a blast! SO thankful we are done with birthdays now until Honey’s in July!!

The boys (and Colly, the 3rd Jan baby!) all had their well checks this month too. The boys are about 10lbs apart right now and both super healthy and strong. The ped was pleased to hear how they’re doing healt wise and in school/sports. Colly is now 19lbs! So incredible considering how things started out last year for her. We knew she’d get there. Her reflux is doing so much better too – instead of 25+ times a day, she’s down to once or twice a day. The more “people food” she’s eating (which is basically every meal we eat together – breakfast, lunch, and dinner with bottles in between) I think has definitely helped. Now that she’s drinking whole milk too when she does spit up it’s that sour smell…which is so unpleasant but I’m choosing to focus on the positive and how far she’s come with it!

Home

We’ve still been working on our house projects – slow moving, but they’re happening! We installed a new ceiling fan/light fixture combo (similar to the one we put in our master which I still need to share!) but are working on updating this room a bit too. I have a collaboration with an amazing custom wallpaper company – they have SO many fun options so I’m really excited to share this with you all too. I WILL be sharing our playhouse makeover reveal this month so stay tuned!

I also finished two other organizing projects that I’ll share here soon – they both have been intimidating to me for quite some time so I’m really glad I decided to tackle them! One is our spice area in the pantry and getting all of the jars in uniform/organized and the other is an expandable skillet/pan organizer which holds lids as well!

We’ve been still enjoying easy crockpot dinners and eating outside as a family lately. The temps are already starting to rise so we’re trying to enjoy our backyard as much as possible before it’s an inferno!

Conner

Conner started tutoring as he has to pass a state test and write a pretty big essay for, so we thought it would be beneficial to get the extra help 1 day a week. This has usually been on Saturdays so that C can help me take him and then I stay with the 3 younger kids at home (and Colly can nap!) It’s been a really positive experience and I do feel it’s helping him dramatically prepare for this test, which is all we could hope for!! He’s also finishing up Phase 1 of his orthodontic treatment and just got his expander. He’s had a good attitude about it but I know from experience that it’s uncomfortable (and hard to talk/eat!) One day when his teeth are super straight it will be worth it though. C has been working with him on this planet (Jupiter!) project he’s had over the last month and his presentation is actually at the school tonight at 5, so we’re excited to go see him and cheer him on 🙂

Cole

Not really much to update on our Bug – him and Conner both are wrapping up running club and they’ve had a lot of fun. He continues to get A’s on all of his papers and tests and we are just so proud of how awesome he’s doing in school. He’s regressed a little bit with his meltdowns/fights with his sister so we are working on that, haha. It’s not always rainbows and butterflies and I try to be as transparent as I can with you all.

Honey

Hun has been my little helper lately. I mean, she ALWAYS is/was even before Colly was born, but she’s really taken it up another notch. We’ve had quite a bit more appointments lately (for all of us) and she’s had to come along of course. She’s helped me settle Colly during my own, helps me brush out her curls and detangle her hair daily, takes notice when/if Colly is getting into something she shouldn’t, and just overall the best big sis. She’s such a funny girl too – she doesn’t stop talking but cracks me up even when I’m feeling all mom’d out. We just got the notice today actually that she’s been accepted into her brother’s school for kinder and I am in disbelief that this has come up so quick!!!! I’m trying to be intentional with our time together at home before she starts full time in August.

Flagstaff

C took the older 3 for a quick weekend trip up to Flagstaff (northern Arizona, where it does actually snow!) last month too! They were hoping to see and play in some snow, however most of it had melted from a small storm a few days before. They got some good quality time in with Dad though and made lots of memories. Colly and I stayed home due to her teething and it not being a super baby (toddler) friendly trip with being outside in the cold.

Work Updates

Many of you know (and likely found me!) from my small business, Curly Q’s Counter. Due to my original printer of 6+ years closing, I stopped printing from May 2020-July 2020. I continued to run the other side of my business on Etsy creating one of a kind distressed denim pieces for infants and toddlers, which is where the whole thing started for my brand in 2013. I was able to pick up printing again in August 2020 with a new printer. There’ve been so many challenges with the pandemic and small businesses (with the postal service included), I decided to stop printing in November of 2020 in anticipation for Colly’s arrival. Again, my Etsy stayed open throughout this time. There’ve been many times where I really wished I was able to do a limited drop or bring back a collection, but with running my blog, Etsy, and also taking on a new role in administrative work for my husband’s small business (I’ve been doing social media for almost 4 years for them, but recently began an admin role to help more with their needs), it just didn’t seem feasible to do. I also began to get extremely burned out from the denim side of my business. I started to realize (as hard as it was, because CQC is like my 5th baby!) with these other jobs I’m doing plus raising our 4 kiddos, it just didn’t make sense to me to continue to burn the candles at both ends. As I said above, the pandemic has made it extra difficult to run a handmade business and I really give so many props to those who are still doing it.

One of my last CQC shipments!

After a lot of discussion with C, we decided it’s best I put my Etsy on pause for now. So what does that mean – is CQC really closed? For now, yes. I am not printing, however I do print for my husband’s company – their uniforms are contracted by me so I am still in touch with my printer every 5-8 weeks) so my website is still open for that and whatever tiny amounts of ready to ship merch I have. My Etsy shop is on ‘vacation’ and I’m not sure when that will be turned off. The cost and supply issues with the pandemic has also had a really negative effect on my business and what I sell. I could keep going on about how it’s so hard, and how I really am sad to be closing/pausing this chapter for now, but I know the future is so bright. If I can get to a place where I feel comfortable printing again and the costs/supply issue makes sense, I definitely can see myself doing that. I loved creating empowering pieces for moms to wear daily to not only give themselves a little pep talk but also feel comfortable in. It was (and still is!) a huge passion of mine to raise awareness through my brand about topics like infertility, NICU life, miscarriage, C-sections, and other struggles in motherhood that I’ve endured. I loved connecting with so many of you through my small shop. And while I started transitioning to working my blogging/content creation full time prior to this pause, this is the first time I can really start treating it like a full time job.

Part of me is sad with this chapter coming to an end, but also hopeful and so so excited to see what’s to come. I wouldn’t say I have more ‘free time’ now since I do have this + my other job, but I can breathe so much easier without having to hand make and ship hundreds of orders a month. I poured everything into CQC over the last 9 years and raising my babies alongside of it, so that’s why I’m holding on that it’s not a forever/permanent thing, but a time to take a step back and focus on what else I’d like to pour into. Not to mention, I have more flexibility to plan my content/sponsored work around my growing family’s needs. That is huge, HUGE, HUUUUUGE to me! I am keeping my website open and I have zero plans of selling my brand, so if/when the time comes to reopen or move forward with CQC, I will be sure to update our newsletter subscribers and social media platforms!

Family Photos

On the 27th we did our family photos with Molly! She’s given me several sneak peeks which I’ll be sharing more on my IG this month but omgosh, I am swooning. We haven’t done professional pics of the fam since Colly’s newborn shoot last January so this was totally necessary!!! The kids change so much in 6 months even, I love hiring a professional to freeze time and have these memories to look back on. C had me do a side by side last night of the boys around a similar age to Colly and Hun 6 years ago with one of our sneaks!!! I am in a puddle!! 😭🥺 Make sure you’re following us on IG to see more!

What’s To Come

I have my March content calendar all planned out – some DIY, home updates, brand collaborations, and rolling out a few new series!!! Mondays I plan to share “Mom hacks/finds/faves Mondays”, Tuesdays will be “Try On Tuesday” with some mom-forward fashion finds/OOTDs, and Wednesdays we will share “We Eat Wednesday” packed with new, simple, and fun recipe content! Hope you will stick around to see!!

Filed in: Motherhood, Uncategorized • by angmdisney •

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Welcome In!

Welcome In!

Hey and welcome to my little corner of the internet! I’m Ang Disney (yep, DISNEY!): a believer, wife, mom of 4, and an entrepreneur. Some of my favorite things in life are brunch, HGTV, white chocolate, long walks through Target, and 90's music - if that's you too… let's be friends!! :)

In this space I hope to inspire you. I genuinely enjoy sharing my fave mom hacks that I use in my every day, home decor, DIY, easy recipes, and attainable fashion for yourself + kids on a budget. Grab a cup of your fave drink and stay a while!

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@disneysinthedesert

disneysinthedesert

What an incredible opportunity to go (live!!!!) on What an incredible opportunity to go (live!!!!) on @arizonasfamily yesterday! 🎥✨

We were able to share some of Colly’s story along with our fundraiser with @picazzositalian that’s supporting Colly’s pediatric therapy clinic, @bloomkidz_az 💚 In April, $1 of every dessert sold at all 6 stores is being donated here. We are so grateful to be able to give back to such an incredible organization that’s been monumental in Colly’s progress and unwavering in support to our family the last 2.5 years. 

Thank you to @cerretanews for taking the time to chat with us and to @elainavpr for always advocating for our family so generously and in such a special way!! 🤍 

#rettsyndrome #rettsyndromeawareness
If you’re still looking for an easy treat to bri If you’re still looking for an easy treat to bring to dinner tomorrow, try this!! The cutest 💛🐰💖🐇🩵

Wishing you the happiest Easter, knowing He did it for me and you ✝️🕊️
Colly works so hard 🙏🏻 At age 4 and by this Colly works so hard 🙏🏻
At age 4 and by this stage of this savage disease, eating by mouth (chewing and swallowing) plus gaining (and even maintaining) weight is extremely difficult. Additionally, most girls cannot use their hands for anything with purpose at this time as well 💔

Please join us in praying that Colly will continue to have hand strength + the ability to use them, that she can tolerate eating by mouth, that she stays seizure AND med free, and that she continues to grow and gain weight. Thank you friends!!! 🫶🏻 Forever grateful for this community who encourages and cares about us.
Obsessed with our new zebra blinds from @lustrowin Obsessed with our new zebra blinds from @lustrowinhome! This was a dream collab for me and it really elevated the windows in our family room, kitchen, and living room ✨ I love how these blinds easily allow for light to pour in during the day while still providing privacy at night. 

They have so many beautiful, modern, and stylish options of window treatments for any home! Use code “DISNEY” to save sitewide at Lustrowin - link in bio!

#ad 
#lustrowin
#homefinds
#homedecor
#windowtreatments
#modern organic
Just received this video from Colly’s PT 2 days Just received this video from Colly’s PT 2 days ago and have already watched it on repeat about 100x 🥹 The squeal of joy is something we don’t take for granted when much of her short life has been consumed with crying, anxiety, pain, and frustration. She genuinely seems so happy and joyful 🥹😭

Also can we also just take a second to acknowledge how much motor planning and brain power it takes to repetitively jump up and down like this?! THAT’S OUR GIRL!!!!! 💪🏻🧠✨

We believe in the power of prayer and humbly ask everyone reading this to please keep praying for her. I will always desperately want more for her, and I am believing in His perfect timing that it will happen. 

#rettsyndrome #rettsyndromeawareness
This is long, but worth a watch!! Colly has been a This is long, but worth a watch!! Colly has been absolutely CRUSHING Rett Syndrome this past month. Literally saying, “Rett who?!?!” 🤯🤗👊🏻 November we witnessed so many miracles happening for Colly. It wasn’t without some bumps, but we have SO much to be thankful for. 

By age 3.5 (she’s so close to 4 now!), most girls with this disease no longer have purposeful use of their hands. Every day she’s able to still use them in any capacity is a miracle, but the fact that she’s doing even more beyond that…is almost unbelievable. 🥹 She is not doing what medical text says she should at this stage of the disease. 

We wouldn’t be where we are today without her massive team at @bloomkidz_az where she receives 5 different therapies M-F full time, and the last couple of months adding in weekly appointments with @dr.connerbor. The impact all of these treatments are having on her is huge, and at this point, essential to her development and continued progress. 

It’s so exciting to be able to post happy + encouraging updates about Colly after so much darkness, sadness, and confusion. Please pray we are able to keep her on this stable track of good health, pray for her team to have the wisdom they need to continue to help her, and pray for even more strength for her body and brain! 💪🏻🧠✨ We can’t thank you enough for cheering our family on as our sweet little girl continues the fight of her life.
The most healing Halloween + diagnosis day yet 🕊️

It’s not a secret that I still carry a heavy grief over Colly’s life. Ultimately, the prognosis of Rett is very dark but seeing her progress since she was diagnosed is nothing short of inspiring. We have so much hope for her future and although there is still much uncertainty, she has an amazing team of therapists, doctors, and supporters. She has treatment plans and goals. She has a family who loves her and will never stop pushing for more for her. 

I was telling a friend recently that this day will always be a reminder of the ending of the dreams/life I saw for her, but how can I wallow in sadness when there is so much joy? Colly IS that joy ✨🪽

God has revealed a lot to me these last two years and has pulled me out of a really scary pit. He’s wiped my tears, softened my heart, and given me strength to be a better mom, caregiver, and person for Colly + my other children. Instead of dread, my excitement for life is returning and I can’t wait to see where we’ll be next Halloween 🤍
Really they are so much fun 🦇💀🎃👻 I lov Really they are so much fun 🦇💀🎃👻 I love making my iced coffee at home in them!

Some have sold out but there are a few styles left! Linked on my blog as well as my LTK shop (in bio!) www.disneysinthedesert.com
Finally sharing the small update I did earlier thi Finally sharing the small update I did earlier this year in Colly Girl’s room! I used a wall stencil from Amazon + the colors are Snowbound and Warming Peach by @sherwinwilliams for the paint 🤩 

I’m personally obsessed with how it came out!! More details on my blog tonight (link in bio)! ☀️🧡🧸☁️
We are beside ourselves and elated 😭😭 If you We are beside ourselves and elated 😭😭 If you are new here, Colly had a handful of words before her second “Rett Regression” in 2023 where she lost them all and went completely silent. A few of those words returned this year with the regression ending (praise the Lord) but “Dad” was never one of them. 

She had said “ddddaaaa” in January of this year but not much came after that. Fast forward to the end of this month, and now when we ask her to say it on command - she seemingly is doing just that 🤯🤯🤯🤯🤯🤯🤯 Absolutely blown away. I swear she’s even saying, “eeeee” at the end a few times as if to say “daddy”! 

We were told Colly would never verbally communicate amongst so many other heartbreaking (and a slew of other WAY MORE terrifying) things that accompany this disease. Honestly, verbally talking fell off of our wishlist a long time ago because we’ve seen her face many other struggles that make every day life so much more challenging for her. My hope has been renewed lately and I’m adding it back onto my dreams for her. 💫☁️ I know she will likely never verbally speak in sentences, but to have a few words would be incredible and I’m sure would do wonders for her anxiety and frustration levels as well. 

Continued in comments 🥹

#rettsyndrome #rettsyndromeawareness
Switched out the drum coffee table we’ve had for Switched out the drum coffee table we’ve had for a few years for this space saving, fluted one! It’s more sturdy (the drum slid around a lot) and also goes with the room better IMO 😍

It’s currently 20% off and I shared more deets about it on my blog + LTK shop tonight (in bio) ✨

#homedecor #cozyvibes #homestyle #arizonahomes
Summer break ended almost 3 weeks ago for us, but Summer break ended almost 3 weeks ago for us, but the temps will be summer-y for a long time to come 🥵🔥 If it’s really hot where you live and your kids love 🍉, try this treat!

Only 3 ingredients and so simple, but I did list the “how to” on my blog (link in bio!) 🍉🍧💚
So much can change in one year 🥹❤️‍🔥 So much can change in one year 🥹❤️‍🔥

In June 2023, we were 7 months into a devastating diagnosis - which would be Rett Syndrome, a rare neurological disease that is a whole body disorder and affects every single thing the body does for us voluntarily. We were told Colly may never walk, she would face severe motor challenges, have so many limitations of her life, and worst of all, a shortened life span. She was also in the midst of her Rett Regression, which is where children rapidly lose any acquired skills they DO have (basic things - like using their hands and swallowing food). It also causes so many issues with mood, breathing, sleep, and much, much more. The only way to put it is non stop suffering, and absolutely gut wrenching. 

One year later and I think we can say Colly is out of her regression and new skills are emerging. In June of 2023, she was just learning to tolerate more time standing up and attempting assisted steps with a walker and bearing weight on her feet. Her mood has improved so much by gaining this independence of walking where she wants and she seems so much more stable. 

“Believing gets hard, when options are few” has never felt so real in my life. I am pretty sure I was circling the drain and at the bottom of the bottom in June 2023. Life was so hard, DEPRESSING, scary, and uncertain. I refuse to give up on God though, because He doesn’t give up on me. While we know Rett is a savage beast, we are believing Colly will continue to defy the odds and she WILL keep surprising us 🥹💫 If you asked me last year if she’d be walking next June, I’d probably try to sound hopeful but I would tell you it was maybe *hopefully* going to still happen in a year or two. AND LOOK AT HER GO!!

If you are in your circling moment, just hang on. Miracles happen every day, EVEN IF it’s not in the way you or I pray about. I know the author of Colly’s story is STILL writing a beautiful one, so I’m going to trust and hold onto that. 

Ephesians 3:20

#rettsyndrome #curerettsyndrome #rettsyndromeawareness
@beddys Summer Launch is kicking off TODAY! 🥳🎉

Ella & Ryan (shown on my bed, here!) are two new colors joining the line up of best-selling Beddy’s at their lowest price point. Not only are they the most wallet-friendly styles, but you can save even more with my *limited time* INCREASED discount code + free shipping!!! Use code ANGDISNEY for 25% off 6/4-6/11! 🤍 

If your bedding could use a little upgrade, this is the best time to shop! We have been using Beddy’s for almost 8 years and couldn’t love and recommend them more!!!!
Last min teacher baskets/gifts! I put these togeth Last min teacher baskets/gifts! I put these together for the kids’ teachers a couple of weeks ago for Teacher Appreciation Week, but they’d be great as an end of the year treat too! I made one for the girl + guy teachers, because they do have both this year!!! Linked everything on my blog tonight with more deets (in bio)! 🍎💕👩🏻‍🏫📝
Definitely a memory made though 🙃😆⚾️ . Definitely a memory made though 🙃😆⚾️

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#momlife #momof4 #momofboys #momofgirls #motherhood #momlifebelike #momproblems
With today being #rarediseaseday, it felt very rig With today being #rarediseaseday, it felt very right to share this now. In the beginning of January, we had the opportunity to discuss one of the first pediatric gene therapy trials for Rett Syndrome happening NOW in the USA!! It is a very exciting time and we are cautiously optimistic about our daughter, Colly, having the chance to receive this life saving treatment. 

We were also so thankful to chat about our fundraiser with @picazzositalian which donates $1 of every chocolate chip cookie dessert sold to @rsrtig (which is the only foundation solely dedicated to the cure) and how raise awareness about how this devastating disease has impacted our sweet girl and  so many others who are suffering from it. 

We need this cure!! Without it, Colly will continue to struggle for life’s basic necessities - BREATHING, eating, sleeping, walking, talking and using her hands. Rett is a severe neurological disease that affects every aspect of her life, everything our brain tells our bodies to do for us is disrupted for a girl with Rett Syndrome. 

Full video is in the link in my bio if you’d like to watch more! BIG thank you to @elainavpr for facilitating this for us, and to @arizonasfamily for allowing us to share 🤍

#rettsyndrome #rett #rettsyndromeawareness #curerett
Happiness comes from a fresh set these days ❤️ Happiness comes from a fresh set these days ❤️‍🩹 Bookmark it for next year! 🏹💘💌
Loved these light fixtures we’ve had in the loft Loved these light fixtures we’ve had in the loft, especially because they aren’t hard wired. However… I hated the cord - so kind of defeated the purpose. I cut the cords and added these battery powered lights and problem solved! 💡 Also added some different battery operated ones to our olive tree to give it a little shine! ✨ 

Linked both of these on blog and LTK tonight (in profile)!
My kids’ birthdays have ALWAYS been emotional fo My kids’ birthdays have ALWAYS been emotional for me. I cry every year on the day that they turn a year older. That reality hits so much harder with Colly, and the fragility of her life. The “bittersweet” of a new year: what it symbolizes and how time moves on for others, but it really doesn’t for Colly. I’m really trying to still be grateful, even through all of the hard. I just wish things were easier for her. I have to keep trusting that God’s plan is so much bigger and better than mine. 

I love you, my angel, Sweetpea Girl 💗 Happy 3rd Birthday.

#rettsyndrome #curerett #rettsyndromeawareness
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