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Disney's in the Desert

January 2022 Recap

February 3, 2022

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Always a zoo here 😉

Hey friends! One of the biggest goals for blogging this year for me is to get more consistent with actually getting real time updates live on here. A way for me to do this is monthly round ups to keep you in the loop with all we have going on! Each month, I plan to do a ’round up’ of the previous 30/31 days and all that happened. I also think this will be an awesome way to document our life so we can look back on it one day and remember all that happened. Hope you stick around and enjoy these each month, too!

The First Month of a New Year!

So….WOW! The first month of 2022 – GONE! It was an extremely busy one for us, as I’ve mentioned on IG that 3 of our 4 kiddos have a birthday this month. So that in itself was a lot, and like I’ve shared before I am always a little bit emotional on each of their birthdays. The first birthday (for my last baby) definitely hit me big time, but every January for Conner and Cole I’m usually a mess and just can’t believe they’re another year older! I am so thankful to be able to witness it, but it still pulls on my mama heart. More on all of this later!

KIDS

Everyone returned to school after a couple weeks off for Winter Break. Cole participated in the school’s spelling bee as he was a finalist for his class. We took a little break from sports after the holidays but things are starting back up soon, it was nice to kind of catch up and not be running from field to field multiple days a week and enjoy a slower pace. Colly went from 0 teeth to cutting 6 at once…FUN TIMES!!! We are thankful they’re coming in (finally, after many months of hard teething!).

HOME UPDATES

We wrapped up a couple more home projects and finally completed the downstairs family room and kitchen updates we started back in the fall. I plan to do a reveal here on my blog and will show you all then but I am SOOO excited that’s done! Here’s a little sneak peek of the floating shelves C built for our family room. We had this idea to make a little DIY built-in entertainment center in lieu of a store-bought one, and I am so in love! They turned out great, and it’s brought me so much joy in this new year to decorate them and add updated pics of the kids to them! We have a few more small projects to get done, but we are slowly checking them all off. I love how home-y and cozy everything feels here lately. We added a new light fixture-fan hybrid thing (it’s so cool!) to our room and added another accent wall, which I’ll be sharing more about soon as well!

LIFE STUFF

The weather has been pretty perfect in Phoenix this last month, I can’t lie! The kids have been riding their bikes and scooters and we even got to go to the big park and ride the train. We’ve had lots of dinners outside (picnic style on the turf and also at our table out there!). The girls have really been enjoying their swings and Honey has been playing with her newly-updated playhouse (promise this reveal is coming this month too!) almost daily.

Alright, so now onto the birthday madness! Cole is 1/13, Colly is 1/14 (certain if I would’ve gone to the hospital when I started contracting on Cole’s birthday last year, they would’ve preformed my C Section that day, and they would’ve shared a birthday!), and Conner is 1/28.

COLE

It’s cliche, but I just cannot wrap my brain around the fact he is 7!!!!! SEVEN! My 5.7lb 34 week old preemie is S E V E N and thriving! So many emotions thinking back to the day he was (unexpectedly born 6 weeks early) and his 8 day NICU stay. He’s a little fighter through and through. He’s currently doing SO well in school: loves reading and just participated in the school spelling bee!, loves Roblox and Legos, and loves loves his siblings more than anything. If you’ve been here for a while you know what an awesome big brother he’s been to Hun over the last 4 years and he is just the same with Colly. So consistent and loving. He is the little family caretaker, still bringing us blankets when we’re relaxing as a family and falling down the stairs at home/turning around in the drop off line every 3 steps to blow us kisses and say “I love you”. Him and Conner are super close as well, he adores his big bro and thinks he’s the coolest. So proud to see him turn another year older and be able to enjoy his bright, happy smile every day.

COLLY

Whoa. She is ONE! Wasn’t I just pregnant with her? No, it seriously feels like it was yesterday I was praying so hard for us to complete our family. Well, she was so worth the wait! This last year was one I will never forget with her: lots of hard moments (being admitted for FTT, dealing with reflux, doctor and ENT follow ups, lots of struggles and sleepless nights) but she was worth every bit of it. She’s made huge improvement (probably another post for another day) with her reflux, and while it’s still happening, it’s so much less severe and more manageable now. Colly loves food – she’s tried it all at this point! – and I can’t say there’s anything she’s turned away, haha. As I mentioned, she loves being in the swing, loves when her sibling are around (so much entertainment and stimulation, #4thbaby), and LOOOOVES (like, LOVES LOVES LOVES) the show Do Re Mi on Amazon Prime. That show is so comforting to her – if you’re not against screen time, definitely check it out. She doesn’t actually sit the entire time and watch it, but something about the songs and all of the singing it has really calms her when she’s crawling around or playing with her toys. Colly isn’t walking yet, and I think she may walk closer to 15-17 mo like Honey did. The boys walked by their first birthdays while the girls definitely took their time to reach these mobile milestones. She’s actively crawling (she is done with her “lazy” crawling at this point haha) and getting around the whole house when we let her but isn’t near walking right now. She’s in bed by 7/7:15 and sleeps the night in her crib. She truly loves her room, too! It’s her little happy place and I’m so thankful for that. Who knew my office that once housed hundreds of screen printed tees for my business would now be the sweetest nursery for our 4th and final baby!? It really makes me soo full just thinking about that. Anyway, Colly Girl (aka “Mugga Root” or “Mugga” as the kids nicknamed her) had her first taste of sugar for her birthday (frosting and some cake!) and needless to say, that was a hit for her, ha! Excited to see her bloom more and grow this next year…just hopefully not TOO fast!

CONNER

Gah. My sweet baby boy. The one who made me a MAMA!! He’s 9, friends!!!!!!! It’s so wild to me. Thinking back to the day he was born, I think I was somewhat in denial that I was really going to have him. I mean, I obviously knew I was pregnant…and would be having him…haha, there’s just literally no way to prepare yourself and when you finally do meet them, your entire life is changed forever. And now, 9 years later, I almost feel like I’m in denial again. There’s no way that petite 6.9lb baby is already nine. Almost a decade! It’s been the biggest blessing of my life to see him grow up these last 9 years, and I feel like I’m trying to hang on to all of his “little kid”-ness now. I was talking to C today and telling him how 7 feels so old, like ‘big kid’, but 9 is basically like…you’re almost 10, and THAT is so close to 12, which is so close to being a teen. AHHH. I’m not trying to get ahead of myself, but more of be aware so that I can be truly present for these next several years. I know it’s going to go just as fast as these first 9.

Conner is the ultimate sweetheart and our sensitive soul. He feels big, and when he listens to you, he listens with such intent. He is genuinely the best big brother to his little brother and sisters, the way he’s taken on this role again with Colly is nothing short of amazing. It’s so touching to see how gentle he is with her. His love for people in general is what makes this kid so freaking special. I worry because I don’t want him to be too much of a people pleaser or look for that sort of acceptance, but I love how tender his heart is. I pray it always stays that way, but he is able to protect it, too.

He loves Fortnite (still), soccer, puzzles and brain teasers, football, and really all competitive sports. He is in running club again this season and really enjoying it. He’s doing awesome in math and soaring through all of those tests, which we are so proud of him for. We love doing find + search books (we love doing the big Waldo books together!) and he has the same critical thinking brain as his Daddy. Love this boy, and while I’m excited for his next chapter I’m also a little scared. I don’t want to be stuck in that scared place though, but embrace all of these new changes we’re about to embark on and pray we always stay close. I know he won’t want to tell me every single thing like he does now in these next few years, but I hope he knows I’m here and I’ll always be there to listen.

What’s Ahead

It’s officially February now, and I have some fun things planned for the blog! Home projects, more DIY, the boys’ birthday party with friends (and then we will officially be done with birthdays until Hun’s in July, woohoo!! ;)), and a couple of really cool partnerships I’m excited to share with you all! Thank you for following along with our fam and if there’s anything you want to see or know about, be sure to leave a comment below!!

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Filed in: Motherhood • by angmdisney •

Welcome!

Welcome!

Hey and welcome to my little corner of the internet! I’m Ang Disney (yep, DISNEY!): a wife, mom of 4, and an entrepreneur. Some of my favorite things in life are Jesus, my home state, piano, HGTV + Food Network, swimming, iced coffee, and deal hunting! I also love music - literally just about every kind. My playlist jumps between worship, country, 90's, rap, rock, and even healing frequencies ;)

In this space I hope to inspire you. I genuinely enjoy sharing my fave mom hacks that I use in my every day, home decor, DIY, easy recipes, and attainable fashion for yourself + kids on a budget. Grab a cup of your fave drink and stay a while!

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The clockwise pour is essential 🧸🍂☕️ Sh The clockwise pour is essential 🧸🍂☕️

Shared this recipe step by step on my blog! Plus a maple butter version is on there too🧋✨🎃

www.disneysinthedesert.com
I just want to share that we are watching a miracl I just want to share that we are watching a miracle… which is the story of Colly’s life - right before our eyes 🥹🥲 Colly has Rett Syndrome, a rare and severe debilitating neurological disorder. For her current age, and the progression of the disease in her body - it’s truly mind blowing to witness her hitting BIG goals and overcoming huge feats. God gets all of the glory in this and we know with Him, all things are possible. Every day we are believing for more miracles for her… not just the big ones, but the small, seemingly insignificant ones that make such a difference in our lives. 

The determination and will this sweet girl has is so inspirational 🥹 She works so hard, thru tons of pain and struggles, every single day. Literally every hour of the day. Our older kids affectionately call her “the GOAT” - because she really is! 🐐🏆

I’ve recently had an influx of messages from parents just receiving this horrible, terrifying diagnosis. It can feel like a nightmare, and so overwhelming… there’s nothing to sugarcoat with the challenges in navigating this. But what I also want to say, is… don’t lose HOPE. Keep exploring every option out there, keep pushing for more (of everything — including answers, therapy, outside of the box ideas, etc). Your daughter will surprise you!!! There’s so much goodness still in store. Ultimately, God is still writing a beautiful story for her life. It’s filled with purpose and joy.

Mark 11:24
Today on the blog I am sharing my bedroom refresh! Today on the blog I am sharing my bedroom refresh!! After Colly’s diagnosis and a really hard season of life, this room slowly turned into a dark dungeon and a sad place for me. With feeling emotionally better these days (therapy + joining a grief group), I’ve decided to reclaim this space and let the light in again ✨ 

I also wanted to add some neutral colors, natural tones, and cozy textures to make it feel comforting. My goal was to make this little area my sanctuary to reset and *rest*. There’s a few spots to sit and enjoy some peace, too!

The whole room really comes together beautifully with the addition of my new King size @beddys! Truly a game changer as a parents of 4. We can tidy the whole room with just a quick zip! Beddy’s was also so kind to increase my share code to 25% off just for my followers for a limited time!!! (Code: ANGDISNEY)

Full tour + sources to decor, furniture, and more is now live at www.disneysinthedesert.com 🤎🕯️
Not ready to pull the trigger on Halloween decor j Not ready to pull the trigger on Halloween decor juuuuust yet, but I will pregame 😉 How fun and unique are these slippers that match the iconic @pillsbury cookies?!! 👻💜🎃

Everything is linked on my LTK shop + blog tonight!
Overly excited about this cute lamp I found for my Overly excited about this cute lamp I found for my kitchen!! Also a little sneak peek of the upgrades we did this spring to the counters, cabinet, and backsplash 👀 More on that soon!

Linked the lamp and bulb on my blog tonight! 💡✨
The cutest $4 graphic tees my girls have been wear The cutest $4 graphic tees my girls have been wearing all summer! Pair them with this pack of 6 colorful bike shorts ($13!) and you have multiple outfits for weeks!!! I showed how adorable they look on my blog tonight!! Find all of the links (blog + products) in my bio 🌼🎀🩵🍓🦋🍭
An amazinggggg show 🤠🏜️🎤🔥🌵 Got o An amazinggggg show 🤠🏜️🎤🔥🌵

Got out with some friends to see MW last night in PHX! We had great seats (thanks to the guy I married 😉) + the best time!!!
They were summery before… but we went a little f They were summery before… but we went a little further ☀️👙👗🍉⛱️🌊🍭✨

In my era of natural nails (the goal is to be fully natural with them - no salons + no UV lights!) but starting here. Just a colorful gel mani and allowing them to grow without tips. Save this for your next nail appt! 😎
Happiest Birthday to the OG Honey Girl 🍯🎈🎂

She’s made our lives SO much sweeter 🥹 It’s truly an honor and privilege to have a front row seat to her childhood, though I’m forever wishing time could slow down just a 🤏🏻 bit. Soaking it up and cherishing each stage we reach because I know it goes quick!!!

I have so many prayers for her for this next year. My biggest one though is that she continues to seek Jesus. I am believing that she will keep Him first and that His hope + joy carries her thru any and every challenge. 

Our special HunBun! What a beautiful miracle 🥹🌈💖 Born on the 9th day just like both of her parents… it’s our unique little bond! One more year until her golden birthday 🥹
How was this already over a month ago?! 🤯 Time How was this already over a month ago?! 🤯 Time is flying. I couldn’t skip over sharing about the last appointment with my girl, the curl queen herself, @lustrae_!!! ➿🩵 

We have been working for the last year to get my color to the ✨blonde of my dreams✨! We’re pretty much there and I’m obsessed!!! Did a little trim too to hopefully keep it growing (the length is there but shrinks up a ton bc of the curl). 

If you’re a local curly, you need to book with Lex!! I’ve had this hair for 30+ years now and am still learning new things thanks to her incredible tips and help! She will work magic on your curls and literally just the sweetest person ever!!! 🪄👑✨
What an incredible opportunity to go (live!!!!) on What an incredible opportunity to go (live!!!!) on @arizonasfamily yesterday! 🎥✨

We were able to share some of Colly’s story along with our fundraiser with @picazzositalian that’s supporting Colly’s pediatric therapy clinic, @bloomkidz_az 💚 In April, $1 of every dessert sold at all 6 stores is being donated here. We are so grateful to be able to give back to such an incredible organization that’s been monumental in Colly’s progress and unwavering in support to our family the last 2.5 years. 

Thank you to @cerretanews for taking the time to chat with us and to @elainavpr for always advocating for our family so generously and in such a special way!! 🤍 

#rettsyndrome #rettsyndromeawareness
If you’re still looking for an easy treat to bri If you’re still looking for an easy treat to bring to dinner tomorrow, try this!! The cutest 💛🐰💖🐇🩵

Wishing you the happiest Easter, knowing He did it for me and you ✝️🕊️
Colly works so hard 🙏🏻 At age 4 and by this Colly works so hard 🙏🏻
At age 4 and by this stage of this savage disease, eating by mouth (chewing and swallowing) plus gaining (and even maintaining) weight is extremely difficult. Additionally, most girls cannot use their hands for anything with purpose at this time as well 💔

Please join us in praying that Colly will continue to have hand strength + the ability to use them, that she can tolerate eating by mouth, that she stays seizure AND med free, and that she continues to grow and gain weight. Thank you friends!!! 🫶🏻 Forever grateful for this community who encourages and cares about us.
Obsessed with our new zebra blinds from @lustrowin Obsessed with our new zebra blinds from @lustrowinhome! This was a dream collab for me and it really elevated the windows in our family room, kitchen, and living room ✨ I love how these blinds easily allow for light to pour in during the day while still providing privacy at night. 

They have so many beautiful, modern, and stylish options of window treatments for any home! Use code “DISNEY” to save sitewide at Lustrowin - link in bio!

#ad 
#lustrowin
#homefinds
#homedecor
#windowtreatments
#modern organic
Just received this video from Colly’s PT 2 days Just received this video from Colly’s PT 2 days ago and have already watched it on repeat about 100x 🥹 The squeal of joy is something we don’t take for granted when much of her short life has been consumed with crying, anxiety, pain, and frustration. She genuinely seems so happy and joyful 🥹😭

Also can we also just take a second to acknowledge how much motor planning and brain power it takes to repetitively jump up and down like this?! THAT’S OUR GIRL!!!!! 💪🏻🧠✨

We believe in the power of prayer and humbly ask everyone reading this to please keep praying for her. I will always desperately want more for her, and I am believing in His perfect timing that it will happen. 

#rettsyndrome #rettsyndromeawareness
This is long, but worth a watch!! Colly has been a This is long, but worth a watch!! Colly has been absolutely CRUSHING Rett Syndrome this past month. Literally saying, “Rett who?!?!” 🤯🤗👊🏻 November we witnessed so many miracles happening for Colly. It wasn’t without some bumps, but we have SO much to be thankful for. 

By age 3.5 (she’s so close to 4 now!), most girls with this disease no longer have purposeful use of their hands. Every day she’s able to still use them in any capacity is a miracle, but the fact that she’s doing even more beyond that…is almost unbelievable. 🥹 She is not doing what medical text says she should at this stage of the disease. 

We wouldn’t be where we are today without her massive team at @bloomkidz_az where she receives 5 different therapies M-F full time, and the last couple of months adding in weekly appointments with @dr.connerbor. The impact all of these treatments are having on her is huge, and at this point, essential to her development and continued progress. 

It’s so exciting to be able to post happy + encouraging updates about Colly after so much darkness, sadness, and confusion. Please pray we are able to keep her on this stable track of good health, pray for her team to have the wisdom they need to continue to help her, and pray for even more strength for her body and brain! 💪🏻🧠✨ We can’t thank you enough for cheering our family on as our sweet little girl continues the fight of her life.
The most healing Halloween + diagnosis day yet 🕊️

It’s not a secret that I still carry a heavy grief over Colly’s life. Ultimately, the prognosis of Rett is very dark but seeing her progress since she was diagnosed is nothing short of inspiring. We have so much hope for her future and although there is still much uncertainty, she has an amazing team of therapists, doctors, and supporters. She has treatment plans and goals. She has a family who loves her and will never stop pushing for more for her. 

I was telling a friend recently that this day will always be a reminder of the ending of the dreams/life I saw for her, but how can I wallow in sadness when there is so much joy? Colly IS that joy ✨🪽

God has revealed a lot to me these last two years and has pulled me out of a really scary pit. He’s wiped my tears, softened my heart, and given me strength to be a better mom, caregiver, and person for Colly + my other children. Instead of dread, my excitement for life is returning and I can’t wait to see where we’ll be next Halloween 🤍
Really they are so much fun 🦇💀🎃👻 I lov Really they are so much fun 🦇💀🎃👻 I love making my iced coffee at home in them!

Some have sold out but there are a few styles left! Linked on my blog as well as my LTK shop (in bio!) www.disneysinthedesert.com
Finally sharing the small update I did earlier thi Finally sharing the small update I did earlier this year in Colly Girl’s room! I used a wall stencil from Amazon + the colors are Snowbound and Warming Peach by @sherwinwilliams for the paint 🤩 

I’m personally obsessed with how it came out!! More details on my blog tonight (link in bio)! ☀️🧡🧸☁️
We are beside ourselves and elated 😭😭 If you We are beside ourselves and elated 😭😭 If you are new here, Colly had a handful of words before her second “Rett Regression” in 2023 where she lost them all and went completely silent. A few of those words returned this year with the regression ending (praise the Lord) but “Dad” was never one of them. 

She had said “ddddaaaa” in January of this year but not much came after that. Fast forward to the end of this month, and now when we ask her to say it on command - she seemingly is doing just that 🤯🤯🤯🤯🤯🤯🤯 Absolutely blown away. I swear she’s even saying, “eeeee” at the end a few times as if to say “daddy”! 

We were told Colly would never verbally communicate amongst so many other heartbreaking (and a slew of other WAY MORE terrifying) things that accompany this disease. Honestly, verbally talking fell off of our wishlist a long time ago because we’ve seen her face many other struggles that make every day life so much more challenging for her. My hope has been renewed lately and I’m adding it back onto my dreams for her. 💫☁️ I know she will likely never verbally speak in sentences, but to have a few words would be incredible and I’m sure would do wonders for her anxiety and frustration levels as well. 

Continued in comments 🥹

#rettsyndrome #rettsyndromeawareness
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